Really sorry to hear that, anniekim. Just goes to show a one-off effort can cause a big relapse.
'Search for extraterrestrial intelligence'. :)
Can anyone put this work in some sort of context for non-expert patients? What is its significance? @JaimeS, @Jonathan Edwards, @Simon M, for...
Great idea! The DWP currently has no disincentive to stop hurting sick and vulnerable people.
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Good to know! I've added you to the list in my first post. :)
I'd have put you on my list, @Tom Kindlon, except I know you're here on the forums and post your own stuff! :)
Given the nature of ME, and given the nature of the test, I find it surprising that those who have patients do the CPET don't appear to have...
Especially while the forum is new, it's good to be a bit active in seeking out news to post on the forum, to keep it interesting for readers....
I've always found it a bit odd that the US had no national ME/CFS society (although Solve has become the de facto organisation, lately). Erica...
Interesting! Basically, it seems that you can hire your local cinema to show Unrest via a bit of button-clicking and if enough people sign up for...
Target appears to be $29,900 but I'm not sure what that gets, in terms of numbers of patients in which projects. Edit: I'd like a bit more...
More detail from this link (broken up for ease of reading): About the Campaign Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) represents...
Interesting! But only if what you're interested in is PEM, though, rather than looking for heart/mito problems.
Just googled a bit, and found this in relation to the two-day test: (The whole article is here.)
Fair enough!
As I said, in terms of not producing permanent worsening, but I'm wondering if you think I'm missing something! How would you define 'safe'?
Holy crap - that was fascinating, for all sorts of reasons. Thanks for posting, @Andy.
Is the CPET (either one-day or two-day) safe for PWME, in terms of not causing permanent worsening?
In last night's Q&A following the Leiden screening of Unrest, David said he'd spoken with a GP who'd got sick in the outbreak - now in her 80s -...
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