I wonder why a more solid reference isn't given for it?
The donation link to support David's work again (I'll put this in my OP, which I should have done from the get-go):...
Excellent. I especially like the threat to report them to the Charities Commission if they fail to comply (though I'm actually amazed that the SMC...
Loads better @Andy, thanks - I put the YouTube link into my OP.
We crossed. I also hope we can table this discussion without further rancour! We're (almost) all patients here, and we can surely discuss things...
I can understand @Bill's reaction to, and concerns about, the critical description of Dr Lloyd's demeanour. I can also understand the point of...
Doh! Thank you. Fixed.
Well, I just watched that and it was superb. I cried when you cried, @dave30th! Seriously, I'd pay thousands for something of this quality and...
Latest blog post: SBS, a national TV network in Australian, featured a 12-minute segment last night on a show called The Feed. It was already in...
Thanks, @Hutan. I've also deleted a couple of my posts that now seem superfluous, given that the ones they responded to have been removed....
But what would the rationale be for that? The other charities recognise that NICE needs to be pressured to move fast to change its...
On p.1 of the supplemental material that accompanied the Chalder paper (where the fitness test results were 'reported', barely) there's this info...
Thanks for posting, @Eagles, good to know about this. What do you think about maybe changing the title of the thread to 'Channel 5 News interview...
Interesting - my experience is of it being very top-down and I hadn't considered the reverse. In the case of talking about PACE, it seems unlikely...
I think that's fair enough. My concern here is that Clare may have been pushed blindly into this without realising that there were important...
I certainly agree that each of us has to take responsibility in life for what we say or do (regardless of whether we're getting paid for it!). I...
I'm sorry, I don't understand your point (the joys of the internet!). I know Clare is head of comms. That doesn't mean that she has the freedom to...
@large donner, although we see some aspects of this differently, I think you raise an interesting question about who funds AfME (if anyone - I...
I see Cort is checking with Phair whether 23&Me data count (I thought it wasn't the full genome).
@Mattie, do you think it would be worth adding to your title, 'Robert Phair seeks data from ME/CFS patients who've had their genomes mapped'?...
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