Just a reminder that the topic of this thread is a question posed to AfME concerning their current position on PACE (though I can understand the...
https://twitter.com/mayadusenbery/status/976910927449620480 [MEDIA]
Also worth a new thread, IMO. :) Why not write in to the papers with that offer, @Jonathan Edwards? Very effective bit of advocacy.
Worth starting a new thread for that to draw attention to it?
Well done and thank you to all the individuals and charities concerned. :balloons:
It may be a bit late but it's not too late for AfME to turn things around and start acting in the interests of patients. I'm glad to see your...
Interesting to see that Clare Ogden of AfME co-signed that letter in Times. :thumbup:
This is an excellent article - and refreshingly includes no horseshit from the SMC. Comments are disabled, sadly - it would have been good to...
What about a new thread to draw attention to that request, @Andy?
I'm not sure that's an accurate description of adapative pacing therapy in PACE, @Invisible Woman - the idea with that was to stay within certain...
They twist and they twist and they twist. Can they really not hear themselves?
Thanks for all your information on this, @B_V. This is a hugely important study and I'm glad to hear the detail of how it's proceeding. It sounds...
The Wilshire et al. paper is also covered in the print edition of today's Times – on page 2! It's different to the online coverage. It's written...
That's complete and utter horseshit. There'd been tons of studies about selective reporting - it was already a huge scandal, years before PACE.
I hope people will retweet @Simon M's tweets! Even the 'nutshell' is a highly useful summary for the non-technically minded (which includes most...
@Action for M.E. - I note AfME's public comment today on the Wilshire et al. critique of PACE: Action for M.E. comments: We welcome this latest...
How do you gather that? I realise I'm challenging people's statements on the forums sometimes and I hope I don't seem rude. But I think it's...
Interesting. It would be good to have that response made public, if the MEA deems that appropriate. It's not good for an organisation such as...
Excellent blog, @Simon, very clear. Thanks for putting so much work into what will be a very helpful summary for the lay reader. I highly...
Can't remember if the ME Association's (very good) press release has been posted:...
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