I sympathise with OT's and physios being put in the position of diagnosing people with ME/CFS and/or Long Covid. As far as I know, they aren't...
Returning to the recent MEA article about this project, a couple of comments: It opens with: We have a thread discussing that study here:...
https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnai...
I have 2 problems with this research. First, why wasn't it done decades ago? Anyone with half a brain could just read the 11 statements and see...
I think a combination of upright time as measured here, time lying down and steps could be very useful. I like this version of upright time with...
From an email: ME/CFS Research Update: an overview of the current research in Germany and Austria Hamburg, 10 April 2024 The new ME/CFS Research...
I think it is a good idea to expand the severity scale to include more detail at each severity level. I always seem to fall between levels,...
I don't think that's right. I think it is intended to be a whole suite of new resources as a toolkit for clinical care, providing information on...
I think the latest reply from Cochrane is little more than an acknowledgement of receipt of our letter, sent simply because their standard...
Sigh, so the project rolls merrily on. I hope the PASS questionnaire will be radically revised.
I assume an individualised structured titrated return to activity program is a version of GET.
I think the "deliberate" versus "fuckup" question does have relevance because it has implications for the future. The appointment of Walitt to a...
See also this members only thread
While I share Steve Topple's anger, I don't think it's entirely fair to blame the lack of proper care for people with severe ME/CFS on 'the ME...
Whichever it was, all the other listed authors of the paper went along with it. I can't help wondering why.
@dave30th, I'm not assuming your comment was addressed to me specifically. Rather I assume it's a response to several posts. I've just reminded...
I think this sort of stuff is a lot about therapists wanting to keep their distance from individuals' and their personal difficulties because they...
I wonder whether Peter Gladwell and his colleagues, including the OT's who run my local clinic that claimed to do pacing before the 2007...
Unless you have a clear idea of the new service model being proposed, how can you design proms or other tools to assist clinicans and patients,...
I'm so sorry this happened to you. It's shocking but sadly not surprising. Gladwell should not be involved in developing new services if he's...
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