Where would a GP/ medic look for advice - NHS guidance. Is this really surprising?
Thank you @Kalliope for this info. This is exactly the kind of approach th Educate ME project that AfME and parents are working on is trying to...
@mariovitali - perhaps you could share insights re liver with @Tilly
https://itunes.apple.com/gb/app/activeme/id458308805?mt=8
Not much use ehen it is only for exercise. I have a weird memory that the App had been dropped. ( This could be a false memory from lack of sleep )
If there was a real time phone app that you could simply hit a coloured symbol as you go through the day, that may make more sense of things . The...
Were these home visits ? If you can' t get out of your bed/ house then I' m assuming that they were. If otherwise, it seems simply set up to...
Can you have an advocate attend with you @Tilly? Could Tymes Trust/ ME Action/ 25%Group/Action for ME provide someone who actually knows what...
Unless you fill in a chart as you do things, it can be difficult to remember what you did and for how long. Then you are prone to making it up....
Last year was my first year of watching. Entertaining to see Dr Rowe' s take on paediatric ME and comirbid conditions. Interestingly, from memory...
My son had post viral fatigue. Our GP now thinks it was CFS/ ME.After 6 months he was very ill. Severe migraines prompted lumbar puncture as it...
I can empathize with your situation, though 2 years since diagnosis. Medical history of lots of small issues suggesting something amiss with...
The question is what effect will it have? Will this be just another example of concerns raised by PWME being given no more than lip service as it...
Re the autism expression overlap. Theory in tweet link is on combinations of mutations, not just one...
IAPT, ££££
Thank you to @Brian Hughes for tweeting Link to thread [MEDIA]
[MEDIA]
Sadly much harder without dairy .
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