Interestingly, a mum on one of the parents' forums asked the physio on the first visit if she could use a heart monitor for a week prior to...
Picture a child. Frustrated at missing out on so much. Eager to catch up with peers. This is a potential recipe for disaster. We don' t have...
What is her ferritin sitting at?
Ticky box
Official statements on Camelford seem particularly ill informed. Seemingly residents were told to boil water before use - concentrating the...
Wrong interpretation, sorry. Misquote.
Thanks @Valentijn . I should hae known it would be like that
Yes it was interesting. I had particular empathy when tests were normal and the family were being accused of making it up... strangely familiar...
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In the letters Simon Wessley wrote re GET, I'm sure there is a statement where he admits that the treatment may harm some ( but then did not do...
In trying to discover why my daughter felt much better on antibiotics to treat H Pylori I came across this paper- many of the symptoms are...
And it has caused harm to people who were not informed of risks
The MUS agenda is worrying. It' s a rebadging and extension of the gameplan used for PACE to many conditions. Effectively it' s a recategorisation...
I think though that the letters to GMC are valid. Some of the experiences with children are the stuff of kafkaesque novels playing out here in...
Given the short time slot, i think the following should be targeted Flaws in PACE and impact on biomedical research ( uk was once a world leader...
I hope Carol is up for it. She came over as really nervous during the parliamentary committee exchanges. Time to get in touch with MPs...
@Valentijn this is not the first paper to adopt this " definition". There may be a relabelling and repositioning going on. I struggle as to how...
No doctors we know who could attend ? Given the wealth of systematic tweaking that characterizes many of EC' s trials , this would be interesting...
At what point does the emporer discover that there are no clothes?
Is there any research group in UK actually capable of both diagnosing and carrying out research on children/ adolescents with ME? Extrapolating...
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