Does any version of 'First, do no harm' apply in this context? (I don't mean this as a bit of point-scoring rhetoric - I'm asking whether there's...
Can this really be an unsolvable problem? A perverse therapy, equivalent to trying to cure diabetes with sugar, worsens the condition and yet harm...
What sort of evidence? Flagging @Tom Kindlon.
@Tom Kindlon points out that in PACE, fitness didn't improve in any group so activity probably didn't either and so there wasn't really an...
Probably BACME members or people within their network whom they can call on to review a paper that's outside their collective area of expertise....
BTW, one of the great things about this forum is the number of patients with long memories and real expertise in the detailed history of PACE and...
I did a search on 'Blakemore' on PR (an excellent depository of all sorts of stuff) and found these posts, which might be helpful:...
Thanks so much for your work on this. This is what we've needed for decades - high profile input from heavy-duty medics - and it has been missing....
What do you think of this, @Jonathan Edwards, @Simon M?
Just posted (held in moderation): It's great that people are trying to raise awareness of ME but worrying to see the old idea repeated that...
They might not, though. For most conferences, there's a call for papers and anyone can submit something. A committee peer-reviews the submissions...
Not meant as a criticism of you, Barry! :)
What do you think about an S4ME submission, @Jonathan Edwards?
I wonder if those studies also show a similar problem of sampling. One of our big issues is that the epidemiology on ME/CFS is pretty bad, because...
Does it, though? Wouldn't that require a large, random and therefore representative population sample of PWME to be taken, which doesn't seem to...
Very interesting! How could that be made to happen?
Do you mean it's invitation only? OTOH, it could be a golden opportunity to force them to be exposed to opposing opinions. It could hardly go...
There doesn't appear to be a boss-like emoticon with which to respond to that! Except possibly this one. :devilish:
I'd also like to see Mark VanNess present at BACME on why it's inadvisable for PWME to undergo graded exercise, given the underlying exercise...
Are you going to add it to the calendar, @Andy?
Separate names with a comma.
