Yes, I do very much appreciate the comments will have been made in good faith, not suggesting otherwise at all. I just feel that these charities...
I have to say I'm extremely disappointed with #MEAction and the MEA, because I took what they said in good faith (as did @Sasha very reasonably),...
Given that so many people do not recover, might it also tie in with the possibility there could be something fundamentally different with those...
Can't help thinking that the psychs have gone off half cocked for years presuming they are doing RCTs and making big claims to that effect, when...
Not sure about that bit though. Several years? ETA: I see @Andy got there before me.
So what genuinely interests me, is how do you control for placebo effects in an unavoidably open label trial, if the psychological condition in...
A placebo effect is essentially a psychological effect - the recipient's response, at some level, to knowing they have been administered a...
That's what is needed for all PwME ;). I suspect @NelliePledge is probably correct on this, and that people close to Carol Monaghan (no 'e' on...
Horribly worrying! Did Carol Monaghan report "that she had been successful with her application" or not? https://www.facebook.com/meassociation/...
Valid points. But the article is focusing on one crucial aspect that is so misunderstood and abused. By focusing on one aspect, the message has a...
Not had a chance to do more than skim this yet, but initial impression encouraging. Will look more later - hopefully still encouraging.
It's a very adequate explanation @DokaGirl :). I appreciate entirely what you say here.
Trouble is that's a very slippery slope. What exactly is it that is someone's fault? That they made the wrong choices at school and so end up in...
Worth keeping in mind that a debate in the HoC is very much a parliamentary debate, and not confined to government itself. There will be...
Glad it's helping @erin. Now and again old remedies turn out to really work, and modern science eventually catches up. Who knows, maybe this is...
It was in the thread title, which is where I got it from, but I see the "3-hour debate" that was in the title has now changed to "debate". @Sasha?
That is brilliant! Really really well done Carol Monaghan, and all those who inevitably are supporting her behind the scenes, and whose ongoing...
Another apology needed! Despite not being the person with ME, I've always had a rubbish memory! I'd also forgotten Keith Geraghty did a great...
Exactly! My wife was always very active, never gave herself the chance to decondition, and is still pretty active albeit within tighter limits....
Yes, sorry @Tom Kindlon, I'd forgotten that you did a very good piece on reporting of harms. I do think still that with PACE etc (maybe common to...
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