That was my reaction too.
I think Jo Edwards has previously said that the volume of rtx and therefore of saline is very low.
Edit: As of 13 December, a recording and transcript are available here. We request your participation in a telebriefing about updates on NIH’s...
I agree - what's causing the tachycardia?
...in the light of... you know... Here's @Simon M's - let's pile those reasons on... [MEDIA]
734... we need to get this moving faster... anyone not signed?
Thanks for posting! :) I've broken that up a bit for readability and have left it unquoted to avoid reducing the font size: In patients with...
But there was no difference between the rtx and placebo groups in terms of the number of people who rated themselves better enough to be classed...
@Jonathan Edwards - are you able to say what this means for the work at UCL?
Any sense of how far we are from diagnostic tools, treatments?
Bear in mind that the patients' increased scores didn't necessarily mean that they were objectively better - only that they were rating themselves...
Were patients getting care/advice in the trial in addition to the rtx/placebo infusions?
Thank you for your frankness. If rtx is a dead-end, we should thank the researchers for looking at it with such care and rigour, and move on. Any...
But if the trial is null, surely there's no statistically significant difference between the number of 'responders' in the placebo and rtx arms?...
I think there's maybe some confusion here from the F&M's use of the term 'responders' to denote patients who get over specific thresholds for...
I think we need now to think of ways to get this out to a much wider audience of PWME. Perhaps if people write to the other ME charities with...
Is anyone doing that research? Lots of groups are researching in various areas and every few months we seem to hear that one group or another has...
And if it encourages people to see the movie, that would be terrific. This Dr Oz appearance seems like a big win to me.
Thanks, @Ron. This one looks like it still has a way to go, though, and it's unclear which, out of so many research teams' potential biomarkers,...
Could be! :) The question remains, though, how near are we even to a collection of biomarkers that are sufficiently sensitive and specific, and...
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