Thread here: Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al You can link public posts from...
I agree there is no useful evidence of efficacy for GET in ME/CFS. However, as has been demonstrated time after time by surveys, there is credible...
I don't think it's just incompetence, I think Cochrane's leaders have been persuaded to stall this new review process indefinitely and keep the...
It concerns me that stories like this one focus on the lack of clinics and doctors helping people recover, when the reality at present is that all...
Cochrane updates Since Cochrane has not posted any update from Hilda and the IAG or anyone else this year, here's my update on what we're still...
It may be similar in terms of exertion. I find folding laundry exhausting - all that arm movement, sometimes lifting items with some weight above...
Some posts that were taking this thread off topic have been moved to a new thread: Wellness Recovery Action Plan, as recommended by BACME, UK
The wellness recovery plan thing is in brackets as an optional extra, I assume for those who are asking for help with psychological symptoms. It's...
Thank you for trying, @Jonathan Edwards. I hope something useful will come of your efforts this time.
I've been exploring some of the current BACME guides, all of which have been updated or written since NICE 2021. Of particular relevance to this...
I've been browsing some of the BACME guides which have all been updated to supposedly be NICE compliant....
Fixed.
The BACME guide for severe ME/CFS has a section on feeding. It does include enteral feeding as needed sometimes, but that is followed by a section...
This article has useful case studies and commentary. Life-Threatening Malnutrition in Very Severe ME/CFS, 2021, Baxter, Speight, Weir
Afternoon sessions Delivering NSS & DHSC recommendations Dysregulation BACME severely affected guide. Long- Covid CYP & Adults Outcome...
I think it would be reasonable for pwME to ask for a transcript of Dr Alan Stewart's keynote speech. He's one of the many medical advisors to the...
Some posts have been moved to: COFFI - The international collaborative on fatigue following infection
The project funded by the MEA and led by Tyson and Gladwell is creating several PROMs. The first two are TIMES and PASS. This is the project Sarah...
Confusing, isn't it. They are both part of this project. TIMES is the symptoms one that was run in November 2023. We don't seem to have had much...
If the diagnoses are based on questionnaires, this is most likely to be about overlapping questions, not necessarily overlapping conditions.
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