The "magic label" was the hype and hope for Rituximab. It may have been the first time ever some patiens felt that effort was made to help and...
The advice to elevate the head end of the bed by 10 degrees is given for POTS. I tried this several times but it seems to make my sleep worse. I...
They're trying to establish the view that it is morally good to treat ME/CFS as non-disease. They're keen on proactive social engineering. So...
After you've excluded heart conditions make sure to also exclude POTS.
There were at least 3 researchers that seem to be new to ME/CFS.
Can't tell if they are crazy or just dishonest or very stupid. The reason patients see themselves as patients is because they are sick. They...
A useful I think way to think about ME/CFS in the context of subgroups is that we cannot reject the idea that it's mostly a single disease (after...
A friend's friend has multiple sclerosis and is bed bound and slowly dying from it. There are also people that have multiple sclerosis and don't...
I could relate to her when she crashed hard after going out, although I don't crash in the same way as she did in that scene. Then again I'm not...
[MEDIA]
A muddle is the reality. There may be a human tendency to respond to uncertainty with dogmatism but this is of no help when wanting to find out...
https://link.springer.com/article/10.1007/BF02698479
Furedi has written on CFS, in an article about medicalization. I think this tells me he is writing about things he knows nothing about....
The illness model they propose tells us something about them. They did not gradually develop this model while being guided by evidence. They...
Please do. [MEDIA]
The real problem is that medicine is generally bad at handling patients with unexplained illness. They think unexplained means somatizing, and...
It is insulting to suggest that patients cannot tell the difference between deconditioning and chronic illness, or that they erroneously think to...
This may be off topic but transient responses to some drug or supplement seem to be typically interpreted as placebo effect. It's important to...
Mental disorder seems to often be informally defined as any behaviour or opinions that are sufficiently distant from what is considered normal....
What an amateur. She should have promised big healthcare savings, gotten funding for a large unblinded subjective RCT, switch outcomes and then...
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