I'd completely forgotten how bizarre the criteria are! My claim was indeed based on mobilising. I use a powered wheelchair, so they've never even...
That's how it's supposed to work in the UK, and for some fortunate people, it does. In theory, it's a sound idea: the impact of the same...
As an aside: We had (briefly, fortunately) a GP covering at our surgery who believed much the same, but even he knew that GET and CBT don't work....
Yes, I guess even if it's more an attempt by a patient rep to gather additional evidence than a formal part of what the committee is doing behind...
If it is real, surely NICE will make the request in some formal way?
Good-o! Let's see it then, Andrew.
I would agree if there were any specialists available, or any existing understanding of what needs to be monitored and tested and reviewed, as...
Thank you!
I'm not able to attend virtually, but I'll note here one of the things I'd like to know, assuming there have been no major changes: Namely, are...
These devices have no meaningful way of knowing much about a person's cardiovascular fitness anyway, as you've said many a time. They have some...
Perhaps once the new NICE guidelines are issued, that could be used as the prompt for a review? (Provided the guidelines haven't been changed...
This is a good point, and also raises the question of whether thresholds for physical and cognitive exertion can be different. Most days I...
I'm one of the folk who's never had noticeable PEM from cognitive activity alone. Sensory stimulus is different altogether, possibly because I...
I hope it goes smoothly, @Agapanthus, and you don't have to take it any further. It's all such hard work, mentally, physically and emotionally....
True – I got my first job that way. I only went for that one interview, and started work four days later. The whole process of spending 37 hours...
Also, they could revisit a previous approach where they acted as the claimant's ally when it came to employment. In the 80s and early 90s, a...
This!
It might also be a sign of already being in significant PEM, which seems to reflect my experience. Activity when not in PEM often makes me feel...
@yME, I saw Prof Vaughan Keeley at his clinic in Long Eaton, which is near Nottingham. This clinic does see people from out of area, and will...
I used a £20 Wilko version of that in the house for several years! :laugh: (This was before I inherited my current chair.)
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