Yep—and we talk an awful lot about what we don't want. We need to pipe up more about what we need.
Thank you, I think I'll go for that version. (Don't know a word of Norwegian, so it won't annoy me at all.)
So only people who know nothing at all about an illness are qualified to understand it. Well, that explains an awful lot of the last 30 years.
Especially as people get into old age, surely. A relative of ours developed ME during the second world war, and had it until she died of...
I suspect that (carefully?) excludes most ME patients, to be honest!
I know it starts off with the usual guff about exercise, but to be fair, it's about showing an effect in humans with cognitive impairment and mice...
One way would be to find funding for a trial in a country where this treatment is not currently being offered, but which has the capability to do...
I think you could reveal how ME affects my cognitive abilities pretty well by giving me an easy crossword (like the Guardian Quick) when I was...
I think @Barry's right—worth checking out. I do get a very similar thing, but there are several causes that all result in quite similar symptoms:...
I'm not convinced anyone really knows, especially given the new variants that are going to keep popping up. My decision, given that I've never...
I know this is an OMF thread, but the emails I get are actually all from UK-based charities. The run-up to Christmas* is when our budgets are most...
It's not a great time of year to try and raise money from people who mostly don't have enough to manage in the first place, is it.
Patients don't pay directly in the UK—but the taxpayer does, of course. In the case of ME, we're often stumping up for services that are largely...
The pool is used for club training, so it's kept cool enough that you shudder when you first get in. It probably wouldn't make much difference, as...
Never tried it myself, but then again I can't even stand up in heat, let alone exercise! :laugh:
Its would be nice to think that the extraordinary way our community responded to the challenge will ripple out and change things for the future....
Probably not in Hansard, which records what was said/written (even if it's not entirely correct).
I think one of the problems is that whether it's a helpful way to do medicine or or not, a group of traditional specialisms does still exist. If...
Another great article, Turning the Nostalgia Up to Eleven:...
The pharmacist at our Tesco does very slow 'flu jabs, as he thinks people get less soreness. Doesn't make any difference to me, but could it have...
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