About the financial donations on the Change.org petition: If someone donates, that money buys visibility for the petition when people are on the...
The email sent to various Cochrane addresses linked through to the thread with the open letter. That thread has a list of some of the people who...
Great to have the German Association for ME/CFS | Deutsche Gesellschaft für ME/CFS e.V. supporting the letter. Thanks @Joh for coordinating things.
No association found with EBV... Due to a limited number of cases, but even so. And nothing for dengue fever or Lyme or rickettsias. I don't...
I don't think the authors looked hard enough. e.g.CFS/ME is associated with pandemic influenza infection, but not with an adjuvanted pandemic...
That's an interesting question. That seems pretty significant. Look at the hazard ratio for people taking doxycycline (0.1). It goes against the...
And that might be the most accurate statement in the introduction. There's an awful lot of saying things confidently when we really don't know....
:thumbup:
Thanks very much to Millions Missing France for their support, and for supplying a French translation of the petition content
Thank you to the World ME Alliance for undertaking to share the link to the petition with their member organisations. Thank you to Millions...
Less than a day after starting the petition, we have over 1800 signatures, and hundreds of comments, many of them from people with ME/CFS and Long...
The Science for ME forum started a petition on 4 September: Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review on Change.org The...
I've just skimmed the rest - a lot is covered. I think it's a decent review, a handy resource for researchers.
I think this (tissue banks) might be something post-infection disease advocates need to work on.
I agree with you both. When I saw the title, I was hoping for a biomedical study that might have found something, so was disappointed to see it's...
I found this recent paper useful in understanding these recent medicines for migraine: Calcitonin Gene-Related Peptide Receptor, 2023, Rashid and...
Sounds like good news German Government announces new funding guidelines for ME/CFS
Abstract Lyme disease is the most common vector-borne disease in North America and Europe. The clinical manifestations of Lyme disease vary based...
With the benefit of a night's sleep, they seem to be saying this, for example for central venous pressure Supine central venous pressure - 8.6 cm...
There's a paywall, so I can't check. I find the results given in the abstract a bit unclear. What parameters remained altered after the 20 hours...
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