I agree 2 weeks is still normal recovery stage, but it could relate to Long Covid. It's pretty interesting that people are experiencing these...
There's no way in the standard consultation process to make a comment on the Introduction content. I guess it could be shoehorned into comment on...
A reminder to consider using the consultation threads for relevant discussion. That way, useful points can inform submissions. Some posts have...
Yep, and to a large extent, that's on the ME/CFS community. That is one thing people with ME/CFS can be accountable for - ensuring our patient...
I feel a bit uneasy about a system where patients veto research that 'isn't liked' or certain sorts of studies are prohibited. I think a system...
And 241,000? Is the method of estimation really so accurate that it warrants the precision of that extra 1000?
https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/consultation-document-the-interim-...
Yes, and those people 'with no axes to grind and a reputation for being honest straightforward individuals' who have made the difference of course...
I'd be interested to hear any expansion on this, given that you have been involved in the development of the Delivery Plan. Do you think there...
Posts about the release of the plan have been moved here: UK: UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group...
Oh dear. It doesn't seem to cross these people's minds, that patient engagement not only depends on the patient's personal resources...
Looking at the threads we have with a "Latvia" tag, I see this study was done with funding from the same 2019 Latvian Council of Science grant:...
A thread for ME/CFS-related news from Estonia, Latvia and Lithuania ************************************************* Coaching to Strengthen...
Interesting that this other trial also involves a muscarinic receptor antagonist: Winsantor Phase 2 small fiber neuropathy drug (WST-057) trial news.
The drug is 4% pirenzepine
Yes. At the risk of clogging up the thread with accolades, that's a great letter.
I'm just about done for the day, but NEAT1 looks interesting. See also The lncRNA Neat1 promotes activation of inflammasomes in macrophages,...
Here's the link to the forum discussion of that paper: Multiple Early Factors Anticipate Post-Acute COVID-19 Sequelae, 2022, Su et al
The S4ME committee only had a very short time to respond regarding signing the letter; I don't think any of us were involved in drafting it....
Some antibiotics have been suggested as a possible cause of ME/CFS and similar illnesses either due to the action of the drug on the body...
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