It is a weird event - there's those three speakers who might have something useful and new to say. But it feels a bit as though some...
PETITION UPDATE 30 September - Cochrane has replied - but don't get excited yet SEP 30, 2023 — We wrote another open letter to Cochrane...
Thanks @Ravn, the archive link worked for me. But, ugh. For goodness sake. The illness that seemed to start my ME/CFS and that of my two...
They seem to be saying that their model is of 'metabolic PASC', so it's not of ME/CFS - Long Covid.
The Pacing and Rest section In common with lots of resources about Pacing, this one misses the important point that a person with ME/CFS has to...
The PEM section I get the feeling that this was written by someone who doesn't have ME/CFS. It hits a lot of the marks that we would want to see,...
:D Praise of a moderator is never off topic. I think that's a rule? Anyway. Thanks Michelle, S4ME only works because lots of good people, such...
As per that last post, Solve have been helpful in promoting the petition, and we are talking with them about the letter. Decisions understandably...
Thanks also to the World ME Alliance and Solve M.E. for promoting the petition e.g. Solve's Facebook link, the World ME Alliance tweet.
Thanks very much for promoting the petition Tom (and yes, for everything you do in advocacy) and to the kind person who has given the petition...
Update posted on the petition site: 28 Sep 2023 update - over 30 ME/CFS organisations call on Cochrane for action SEP 28, 2023 — In less than...
Tack! to RME Östergotland in Sweden for their support for this campaign.
Sounds as though the event organisers have ME/CFS and fibromyalgia, and quite a bit else, all sorted - mechanisms, treatment...
We've made an update on the petition: 28 Sep 2023 update - over 30 ME/CFS organisations call on Cochrane for action SEP 28, 2023 — In less...
Oh yes, I'd forgotten about the label of 'flat affect' that is often thrown around. A number of us have made this point before, here's me saying...
Another thing I noticed over a day of being hooked up was that my fingertip oxygen saturations would often drop to 92% before heading back up to...
Yes, I think that's why Trish made the comment she did. As you say, against the idea of low oxygen levels being typical in ME/CFS blood, there is...
Thanks Andy. Is there any convincing evidence that, on average, people with ME/CFS have more mood swings than is normal for people faced with an...
Inducing mutations in a class of viruses that attack humans sounds like a bad idea. Lots of articles around on this - here is one Guardian one...
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