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  1. Hutan
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I know we've discussed it before, but is there any way the study can be tweaked to accept people who have been diagnosed with Long covid and pass...
    Post by: Hutan, Sep 21, 2023 in forum: Recruitment into current ME/CFS research studies
  2. Hutan
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Terrific to have the support of Action for M.E. (AfME) in the United Kingdom for the open letter and promoting the petition. Thank you.
    Post by: Hutan, Sep 21, 2023 in forum: Petitions
  3. Hutan
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    How interesting. I had a flare a couple of years ago now (I think, the years blur...) and I ended up with lumps. First one near my elbow, then I...
    Post by: Hutan, Sep 21, 2023 in forum: ME/CFS research news
  4. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    Charles Shepherd :thumbup:
    Post by: Hutan, Sep 21, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    The problem is, the words on their own mean something. Who wouldn't want medical practice to be 'based on evidence'? I guess it's the quality of...
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Hutan
    Post

    UK: Harrogate and District NHS: Living with Pain and Chronic Fatigue Syndrome/ME Service

    It's interesting to read that @Sly Saint. I mean, of course there are things that could be improved, the focus on fatigue, the 'CFS/ME', the...
    Post by: Hutan, Sep 20, 2023 in forum: UK clinics and doctors
  7. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    :laugh:
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    Heaven help us. The Association for Neuro Linguistic Programming (NLP) featured Bruce Arroll instructing on designing RCTs in 2015....
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    I note that Professor Paula Lorgelly is a faculty member of the School of Population Health at the University of Auckland. She was instrumental...
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    So, the School of Population Health at the University of Auckland might be the target of a letter.
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    :D I reckon it could be worth writing to them - there is a contact form. There's a bit to say - NICE guidelines: rating the outcomes of the PACE...
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Hutan
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Utterly horrendous RNZCGP case study on 'CFS/ME': RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis
    Post by: Hutan, Sep 20, 2023 in forum: Regional news
  14. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    It's mostly an ad for the Lightning Process.
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Hutan
    Post

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    Oh SNT, that is so dispiriting. Horrendous misinformation. Is there anything we can do?
    Post by: Hutan, Sep 20, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Hutan
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thanks to ANZMES of New Zealand for signing the letter and promoting the petition.
    Post by: Hutan, Sep 20, 2023 in forum: Petitions
  17. Hutan
    Post

    Review Epstein-Barr virus-acquired immunodeficiency in myalgic encephalomyelitis-Is it present in long COVID?, 2023, Ruiz-Pablos et al

    Thanks for being here @Manuel. As an example of my earlier comment about needing to take a good look at the evidence on which the theory is...
    Post by: Hutan, Sep 19, 2023 in forum: Long Covid research
  18. Hutan
    Post

    Comparative study showed that children faced a 78% higher risk of new-onset conditions after they had COVID-19, 2023, Di Chiara et al

    They had a control cohort and the data came from medical records. However, I do think there might be an overstatement of the risk of new onset...
    Post by: Hutan, Sep 19, 2023 in forum: Long Covid research
  19. Hutan
    Post

    Vaccination after developing long COVID: impact on clinical presentation, viral persistence and immune responses, 2023, Nayyerabadi et al.

    I'm not sure how you get 16 unvaccinated participants @EndME? 44 of the 83 participants started the study unvaccinated - and they were assessed...
    Post by: Hutan, Sep 19, 2023 in forum: Long Covid research
  20. Hutan
    Post

    Analysis of microvascular and neurodegenerative complications of mild COVID-19, 2022, Kolkedi et al

    Yeah, that is weird. They don't say in the abstract. It looks like acute covid, Long Covid and people who recovered ok.
    Post by: Hutan, Sep 19, 2023 in forum: Long Covid research
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