They are on our list to contact - so, yes, please do contact them for us :)
Latest MassME newsletter is out 17 September - webinar by a Long covid clinician 28 October - webinar by Ed Yong There are dates for their...
From the latest Massachusetts ME/CFS and FM Association: DO YOU SUFFER FROM FIBROMYALGIA? This research study investigates whether a method of...
Cochrane has much bigger problems than us, including, as far as I can see, how it can continue to exist. That's (somewhat perversely), not good...
An update has been posted on the petition site:
I think we could. It's probably better to have a more inclusive list than a less inclusive one.
Finnish Medical ME/CFS Association added, thanks @mango
Thank you very much to the following organisations for adding their support to the Open Letter, and for promoting the petition to their members:...
:)
Those factors (bullying and so on) may increase the risk of FND. And they may not. It doesn't sound as though this paper sheds light on that....
I did have the same thought. I suspect that chronic Ciguatera and Gulf War Illness are ME/CFS-like responses to toxins, no trigger infection...
Added, thanks
Great news. Seems our disease is the trendy new thing.
Thanks Solstice, ME/CVS Vereniging added.
Thanks very much to Post Viral Research Aotearoa for supporting the open letter. https://www.pvra.nz/ This is a New Zealand-based research foundation.
I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not...
A German team: Hölkeskampring From the introduction: So, they are hypothesising that the lack of good evidence for autoantibodies in Long covid...
Association Francaise du Syndrome de Fatigue Chronique, Appelation Internationale: EM/SFC We now have an organisation news thread for this CFS...
I think getting more local and national organisations added to the list of supporting organisations in the Open Letter thread is very important....
There's a great comment by @Peter Trewhitt on David's blog - it summarises the issues well.
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