can someone on twitter let Sten Helmfrid know also
Xavier Gimeno is currently having a debate with Sten Helmfrid on twitter about subjective/objective outcome measures. [MEDIA]
[MEDIA] eta: maybe not imply it's only for those directly affected by ME, we need all the help we can get!
@Gecko Miranda Hart?
this is not the first time that the Sussex ME Society has been the ones to release news on BACMEs behalf; they (BACME)first introduced their new...
I've put a note on the thread for the other petition asking people to consider signing this petition ( it's still getting signatures).
This has just been on the news where I am. Those suffering with Long Covid in Sussex are among some of the first in the world to take part in a...
I can't see this petition posted on the S4ME twitter ac (?)
Petition update Petition passes 6,000 signatures Mark Harper Cambridge, ENG, United Kingdom 20 Aug 2021 — I've emailed the NICE committee as...
note this is not the only ME support group in Sussex @Graham runs one (East Sussex) and there are a couple of others in Sussex as well I think....
https://www.bacme.info/sites/bacme.info/files/styles/profile_picture/public/modules/image/BACME%20Annual%20report%20Jan2021.pdf From constitution
shame we can't do a Crawley and add the signatures from the other petition to this one.
to facilitate sharing (thanks @Tom Kindlon ) [MEDIA]
Autoantibodies to Vasoregulative G-Protein-Coupled Receptors Correlate with Symptom Severity, Autonomic Dysfunction and Disability in Myalgic...
Well if it isn't clear now that the group are 'on the wrong side' given that their chief medical adviser Alistair Miller is one of the key...
3011 night night
https://www.s4me.info/threads/request-for-patients-stories-harmed-by-get.21939/
this appears to have originated here:...
eg https://www.s4me.info/threads/sussex-kent-me-cfs-society-promotes-esther-crawleys-clinic-and-lp.13332/
https://cambridgeme.org.uk/contact/ eta: I have contacted them
Separate names with a comma.
