Some details are now know. I'm not happy about Chalder fatigue scale being used as primary outcome. https://clinicaltrials.gov/ct2/show/NCT03691987
https://www.healthrising.org/blog/2018/10/10/cdc-roundtable-multisite-klimas-reset-chronic-fatigue-syndrome/
Maybe ME/CFS is nothing like any other illness and that's why we can't figure it out because we keep trying to investigate it like it's any of the...
It's a cognitive bias. Placebos seem to only work for things we can't measure objectively.
I like this part. How to make harms disappear: Yes, the belief that exercise can cause or has caused a relapse is viewed as unhelpful illness...
We have patient stories and yet, as far as I know, double blind placebo controlled clinical trials of antivirals have shown little to no benefit....
I would say that different triggers produce (somewhat) different kinds of symptom exacerbations.
Here is a link to the talk by Ron Davis on viruses in his sample of 20 severely ill patients. They tested for the viruses that many of the...
Ron Davis recently said that they were unable to find any viruses in severely ill patients. These patients have actually less viruses than healthy...
You may not be aware, but this is probably the place on the internet with the highest concentration of experts on the CBT/GET/PACE controversy....
How do you exclude somatoform disorder anyway? It's essentially defined as multiple unexplained symptoms. I think it might just exist to give...
I am not convinced that lack of specificity (of IOM criteria or others) is as much of a problem as is believed. It is a simple elegant explanation...
But is it true to say that "the IOM specifically states there is no brain involvement for those who fit SEID"? This study is included in the IOM...
Are children not worth the inconvenience of admitting an error?
Where does it say this? I'm looking at it right now and it has a whole section on brain abnormalities. Please tell me more about these myths....
The only thing I learned from this article is that the history of BPS medicine in Germany is boring. Nothing interesting happened. The authors...
The concern that IOM criteria would lead to diluted research cohorts and thus lack of progress is potentially valid, but rests on the assumption...
How do you exclusion criteria proponents think that the combination of ME and depression should be handled? Should patients with ME be denied a...
Is sore throat seen as evidence for some immunological process? I think it could also could also be a form of gastric reflux (presumably resulting...
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