That's a great opportunity to explain problems with the cognitive-behavioural approach to ME/CFS, the PACE trial, and how this affects patients...
Looks like a copy and paste error to me. Is he collecting bookmarks for later use?
Sounds like QMUL was either careless or was actively trying to prevent an accurate analysis of individual patient outcomes.
I hope the Karl Morten team has data that will show GET to be useless/harmful. Then we can finally move on from CBT/GET.
Most patients, when they first get sick, have a bias towards trying to carry on despite the illness. They then painfully learn that they must...
I think it would be good to test the things many patients agree are helpful based on their own experience (but which are not the things everyone...
I think this thread demostrates that patients already have opinions on sleep. That suggests they would give biased answers in a clinicial trial of...
Exactly. Afternoon naps are also good (in moderation).
Excellent paper. This will be very useful. I do find it strange that it mentions a need for high quality clinical trials of CBT/GET (this is...
There urgently need to be some sort of specialists that can treat rapidly deteriorating patients, those in need of hospital care for whatever...
Help with cooking and cleaning could be helpful in cases where merely doing all of these every day is already overexertion or places a high burden...
The present diagnostic uncertainty would actually make sense if PEM is a fairly specific problem that can arise from a variety of illnesses. That...
It's hard to see how precision medicine isn't going to be the future. You've got to treat the person as it is, not treat an average person that...
Also, I think history shows that once the biology of an illness is understood, psychosomatic models for that illness are abandoned because they...
There is is simply no good reason to believe that ME/CFS has any sort of psychological cause. Refer to the recent paper on the cognitive...
This is of interest because it is reporting amazing results (it is however a rather preliminary study). The subgroup of patients who had...
I don't understand how someone can be severely limited by illness without fatigue. Every nontrivial illness I've had came with fatigue. Maybe the...
It all makes sense! The CBT/GET model is a patient blaming device and it works very well: no patient is without blame in this model, because...
POTS can be diagnosed with a tilt table test. ME/CFS is associated with an inability to repeat the results on 2-day cardiopulmonary exercise...
:D
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