My rheumatologist insisted that I had fibromyalgia. I may have – certainly have the pain – but I've never been diagnosed with it. She's the only...
I think there's a lot of sense in this, but we still need ME as an interim diagnosis. Partly because it tells the patient what they need to avoid...
Or what they're supposed to be treating, or how written English works. Be awfully nice to see someone recruiting a practitioner to engage with...
I can't remember whether I posted my experience here (apologies f I have). Anyway, I had my first dose of the AZ vaccine on 27 February. My arm...
Wins the ME internet for the best analogy ever! :trophy@ :rofl::rofl:
It would be really interesting to know whether there have been fewer EBV-associated cases during the pandemic. Transmission among young people...
The above snippet is from @Simon M's participation bias thread, but it isn't really the right one for this. I'm thinking about enabling...
I suspect a lot of my middle aged friends wish they did! If eating one chocolate bar or a portion of pudding resulted in painfully swollen...
Just to help my poor non-maths brain, are we talking about two different things? DecodeME is looking for genetic factors associated with ME, but...
I definitely only developed it when I got ME, and the same goes for some other folk I know. It reliably triggers PEM, and it isn't the result of a...
To be fair, if you happen to be one of those who reacts to it, it does quickly become obvious that it's caused by refined sugar. I found, right...
Mine was 'nitwit'. Presumably means that, linguistically, I'm still seven years old?
I also seem to be a responder (I got little or no PEM when taking it), but the problem here in the UK is that people wouldn't get any monitoring...
We'd probably be best starting from the first occurrence of recognisable ME, wouldn't we? It is thought to have a relapsing/remitting pattern in...
Hopefully that will go well. I can't see them doing it by video, really! I'll probably struggle too if prescribed, as I have severe psoriatic...
Mine was similarly complicated, covering a period of several years. My family noticed that my stamina wasn't the same after measles, but I'm...
Well, 30 years after starting to accumulate the painful lipomas that my grandmother and aunt had, and 10 years after developing painful fat on my...
It would be easy enough to do a members' poll on best-guess-at-year-of-onset, wouldn't it? Even if the software wouldn't allow a list of 50+...
It really isn't. Advertising stopped propping up newspapers a long time ago; even when I worked in the industry years ago, it was only usually a...
I notice that Mrs Trellis of North Wales* has conspicuously not been featured yet. This alone is grounds for complaint, as she is clearly being...
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