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  1. Sly Saint
    Post

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    other articles by Dr Mark Harper who set up the petition: ME battle ‘must not be repeated with long Covid’, says chair of Cambridge support group...
    Post by: Sly Saint, Aug 18, 2021 in forum: Petitions
  2. Sly Saint
    Post

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    https://www.s4me.info/threads/nice-me-cfs-guideline-draft-published-for-consultation-10th-november-2020.17687/page-61#post-364025
    Post by: Sly Saint, Aug 18, 2021 in forum: Petitions
  3. Sly Saint
    Post

    United Kingdom: Sussex & Kent ME/CFS Society News

    see tag "sussex me society"
    Post by: Sly Saint, Aug 18, 2021 in forum: News from organisations
  4. Sly Saint
    Post

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    can someone let the Long covid community know about this
    Post by: Sly Saint, Aug 18, 2021 in forum: Petitions
  5. Sly Saint
    Post

    Articles on NICE guidelines 'pause'

    Mail online: U-turn as health watchdog pauses publication of updated ME guidelines Miller gets the last word again....
    Post by: Sly Saint, Aug 18, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. Sly Saint
    Post

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    now at 2136
    Post by: Sly Saint, Aug 18, 2021 in forum: Petitions
  7. Sly Saint
    Post

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    608
    Post by: Sly Saint, Aug 17, 2021 in forum: Petitions
  8. Sly Saint
    Post

    Articles on NICE guidelines 'pause'

    Article in Telegraph might need subscription Health watchdog pauses plans to scrap therapy and exercise as treatments for ME Nice delays...
    Post by: Sly Saint, Aug 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  9. Sly Saint
    Thread

    Petition: Don't let vested interests perpetuate harmful treatments for ME/CFS!

    ME/CFS strikes 1 in 250 of us. It is a devastating illness, more disabling than angina or multiple sclerosis. Three quarters of sufferers are too...
    Thread by: Sly Saint, Aug 17, 2021, 19 replies, in forum: Petitions
  10. Sly Saint
    Thread

    Articles on NICE guidelines 'pause'

    Charities dismayed as move to stop recommending graded exercise therapy is opposed by some medical groups The National Institute for Health and...
    Thread by: Sly Saint, Aug 17, 2021, 67 replies, in forum: 2020 UK NICE ME/CFS Guideline
  11. Sly Saint
    Post

    Articles on NICE guidelines 'pause'

    https://industrinews.com/health-watchdog-accused-of-capitulating-to-vested-interests-over-chronic-fatigue-as-it-delays-new-advice/
    Post by: Sly Saint, Aug 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. Sly Saint
    Post

    Clare Gerada: influence on UK medical practice and ME/CFS management

    her other half wrapped his chelsea scarf around his face when he was serving her that soup.......
    Post by: Sly Saint, Aug 17, 2021 in forum: UK clinics and doctors
  13. Sly Saint
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I take it all back. the petition is here:...
    Post by: Sly Saint, Aug 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  14. Sly Saint
    Post

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    interesting given what's just happened re the pause of guideline publication "The course is currently offline while being reviewed to be in...
    Post by: Sly Saint, Aug 17, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Sly Saint
    Post

    Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

    Over 7K Sign #MEAction’s Response to Flawed CDC Review https://www.meaction.net/2021/08/16/over-7k-sign-meactions-response-to-flawed-cdc-review
    Post by: Sly Saint, Aug 17, 2021 in forum: Advocacy Action Alerts
  16. Sly Saint
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I seem to remember MS saying a short while ago that several Royal Colleges were going to make their opposition known. Who might have spurred them...
    Post by: Sly Saint, Aug 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. Sly Saint
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    August 16, 2021 Positive Development in ME/CFS Coming Soon rest of post here...
    Post by: Sly Saint, Aug 17, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  18. Sly Saint
    Post

    A general thread on the PACE trial!

    possibly all the documents such as the training manuals, participants newsletters etc, that I seem to remember 'disappeared' from the original...
    Post by: Sly Saint, Aug 16, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Sly Saint
    Post

    Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescents and Young Adult Cancer Survivors? 2021, Fauske, Reme et al

    [MEDIA] see thread
    Post by: Sly Saint, Aug 16, 2021 in forum: Other psychosomatic news and research
  20. Sly Saint
    Thread

    Health, Wellbeing and Prognosis of Australian Adolescents with(ME/CFS): A Case-Controlled Follow-up Study, 2021, Josev et al

    Health, Wellbeing, and Prognosis of Australian Adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Case-Controlled...
    Thread by: Sly Saint, Aug 16, 2021, 16 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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