Symptoms by definition are what is subjectively reported by the patient. Signs are things that can be seen and/or measured by others. Fatigue...
I'd like there to be more longitudinal studies that follow patients over a year or more, with continuous monitoring of everything that can be...
I also have significantly reduced veg peeling and chopping by using frozen veg and some supermarket ready peeled and chopped fresh veg. I try to...
Can you clarify what you mean by measuring PEM?
I have read through the paper. They did not find any useful effect from their carefully planned, well supported by experts and individualised...
Hi @yannlk, I'm really sorry to hear that. I think this shows up the importance of trials like the one on this thread being done properly with...
My solution to the kitchen sit stand dilemma is to sit on a high stool.
That's a pretty good article by Charlotte Blease about the Dragons' Den part of the story. I'm concerned that by repeating all the bad ways pwME...
I wonder whether many doctors are using that post viral code for Long Covid.
This thread might be useful: Mast Cell Activation Syndrome (MCAS) - discussion thread
I have some sympathy for Whitney, in that as a very sick person probably only able to read a little on social media, the last thing he would want...
How can they double blind beetroot juice versus water? And what is the hypothesis this would be testing?
I agree, it should be useful in all sorts of clinical contexts, not just physiotherapy. Many thanks to Physios for ME. And I agree with JemPD...
42 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, CTRS. DISEASE CONTROL & PREVENTION, https://www.cdc.gov/me-cfs/treatment/index.html (last...
Some posts have been moved to: NHS England web pages on ME/CFS updated 29th October 2021 (NICE publication date)
I think the most annoying thing about this article is the authors' rewriting of each of 4 womens' words in order to 'explain' them and fit them...
And another one: Bodies in lockdown: Young women’s narratives of falling severely ill with ME/CFS during childhood and adolescence, 2022, Krabbe et al
Another article from 2 years ago by the same team about the same group of 13 young women's experiences. The fragile process of Homecoming - Young...
Two things of particular note 1. Federovski hasn't understood PEM 2. He hasn't read the NICE guidelines properly. He says: That is not what...
I watched it for a few years a long time ago. They are people pitching their businesses to investors. They don't have to be innovative products,...
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