The clinical leadership group is mostly therapists - OT, physio, psych., a couple of GP's and doctors representing the Rehabilitation organisation...
https://www.clinicalpcs.org.uk/ The Clinical Post COVID Society is a joint initiative between NHS England and British Society of Physical and...
No need to apologise. Your post is fine. It was just my brain that made a silly switch.
My brain did a noun verb switch. Of course you mean they are raining blows on us, not blowing rain on us.
Moderator note Brian Walitt's central role in the current and future of ME/CFS and Long Covid research at NIH is a major area of concern that goes...
Thank you Arvo for digging further into Walitt's past influence and current and future central role in ME/CFS research at NIH. I find it deeply...
I don't want to divert this thread, but I wonder whether this study has any relevance here: People with Long Covid and ME/CFS Exhibit Similarly...
You'd think if they were intending to use this test on pwME, their first step would be to validate it with a much bigger sample of patients and...
If it takes that many words to explain, it suggests to me they don't really know what they mean. Have either Nath or Walitt actually produced a...
patronising twaddle.
I'm finding it hard to visualise what the participants were doing in this test. Are they sitting upright at a computer and repeatedly tapping a...
I don't think I would find finger pulse oximeter oxygen readings helpful for pacing. My readings taken at random vary between 95 and 99, usually...
I recommend it. Postal voting has worked very well for me and my daughter for years. A reminder also that if you are votiing in person you will...
That seems like a very good response rate. Well done DecodeME team!
My attempt early on to do the HRV measurement on my phone on waking failed as I couldn't manage it consistently, and the scores Visible gave me...
Part of the process of developing these questionnaires is a retest 2 weeks after the first time you submit it. I have just received mine. I...
I haven't been able to follow all this discussion, and don't want to add to the burden of too many posts to read, so I'll try to make this brief....
Moderator note Some posts have been deleted. Please avoid speculation about the personal lives, health or motivation of participants in the study.
So both are forms of GET, just done differently. What a ridiculous study. The GET design looks like it's straight from the PACE GET manuals,...
The phrase 'effort preference' seems to be the psychologised version of 'exertion intolerance'. The Wikipedia article on preferences in...
Separate names with a comma.
