Thank you @Ravn for setting out the problem with all ME/CFS definitions so clearly. I think the heart of the problem is how PEM is defined and...
Some posts have been moved to: USA: National Institutes of Health (NIH) intramural ME/CFS study
Don't let my comment put you off testing the questionnaire. It's important they get as much feedback as possible. I'll try to have another go...
I got around my problem reading the small pale text by massively expanding the text using Control +. But, like Andy, I gave up after a few...
I just opened the questionnaire and fell at the first hurdle. They have used a pale grey small type for the introductory section I can't read. I...
:hug: rest well.
I can't use 'biological' clothes washing stuff as it makes my skin itchy. I just use Ecover plan unperfumed bog standard laundry liquid for...
That sounds ominous. I hope they are not placing weight on the old HPA axis, sympathetic overaction, it's really just stress hypothesis beloved of...
Another anniversary passes in the interminable process of producing a replacement review: 4 years ago: 13th February 2020 Appointment of lead to...
2024 Week beginning 15th January 2024 Cochrane petition and complaints The Science for ME petition 'Cochrane: Withdraw the harmful 2019 Exercise...
Thank you Joanne Hunt. I think this is a clear account of the historical situation in the UK in terms problems with access to state disability...
Me too, @Peter Trewhitt. No pots to wash and only takes 1.5 or 2 minutes to microwave. Other option is on a good day boil up a quantity of rice in...
I'm not on Twitter, so I can't reply directly to Kim H Hi Kim H, if you're reading this, I'm sorry you feel your condition is ridiculed. That's...
I think the only way we can get change is having doctors who understand ME/CFS is not what Wessely and co portray it as, and take the fight to the...
Looks like it's the same pyramid selling model as LP. Also calling their practitioners coaches rather than therapists, is part of the same scam...
I agree. I looked at it this morning expecting to find something I could give an anaesthetist, and was therefore disappointed. It's very good for...
I would lay the blame equally on Michael Sharpe and Peter White, both of whom have not only influenced the medical profession, but also the media,...
Will this disaster never end. I have submitted this on their contact form: The automated reply promises to get back to me within 48 hours.
The committee has added a new update on the petition. In summary, we say there's no news from Cochrane since the December update from Hilda, and...
I'm not clear on what grounds you suggest many similarities between ME and Parkinsons disease. They seem quite different to me in main symptoms...
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