I've been making this observation over quite a long time now, because NI credits are linked to what kind of benefits you get.
No that's fine @Sasha, I took it as a healthy critique of what I said, not of me personally :).
Everything you cite @lisette is very pertinent, and somehow this seems to me one of the most abhorrent things I've read about AfME, as if it sums...
Do we know who of our more high profile advocates Jen might be more inclined to listen to, and not just be offended by their 'interfering'? I know...
Yes, you are right, my wording might have been better to say "This clearly shows the possibility that PwME have ..."
Yes, there can in fact be a big difference between feeling insulted and being insulted. One person's truth can be another person's insult.
That actually seems to sum up much of the BSP-inclined 'research'. I suspect that if data could ever be fully released, there might have been much...
I didn't know someone had done a different PACE trial ... :rolleyes::).
Or road drills :D.
I remember that well when attempting to discuss stuff with my daughter , "Yeah ... whatever Dad."
Makes you ponder exactly who is doing the cheating.
But good to see it reported that "Prof Fink is a lonely voice", and hopefully making himself ever lonelier as he persists with his Bodily Distress...
Took me a moment to suss the typo here Simon :).
This clearly shows PwME to have similar mental and emotional capabilities as PwMS, but much more impaired physical and social capabilities.
When we started out afresh here in the embryonic stages of our shiny new forum, there was a fundamental tenet that I'm sure we all agreed was part...
If they are not logging in here then they won't see it. A PM would email them I guess.
Yes, even one way communication can be highly effective sometimes.
The more I hear about @Action for M.E., the more I'd like them to engage here. I suspect they are not very inclined to though, but I really do...
I wonder if, 7 years on, Richard Horton finally realises what a ridiculously uninformed statement this was ...
Linda is Advocate of the Year, Jen is Patient Advocate of the Year. I'm guessing they are two separate awards?
Separate names with a comma.