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  1. Arnie Pye
    Post

    Building an evidence base for management of severe ME (including sleep management)

    There is this website : https://www.patientslikeme.com/ Apart from knowing it exists I don't know anything else about it. It does have a section...
    Post by: Arnie Pye, May 14, 2019 in forum: ME/CFS research
  2. Arnie Pye
    Post

    Building an evidence base for management of severe ME (including sleep management)

    I don't know anything about severe ME. I particularly don't know how much people with the condition eat, whether they are able to eat, whether...
    Post by: Arnie Pye, May 11, 2019 in forum: ME/CFS research
  3. Arnie Pye
    Post

    Article: The alarming hijacking of the BioPsychoSocial model

    It depends on your age whether she could prescribe or not. Melatonin in the UK is only prescribed for adults aged 55 and over....
    Post by: Arnie Pye, May 10, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Arnie Pye
    Post

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Are there any sources of printed journalism that aren't, these days?
    Post by: Arnie Pye, May 10, 2019 in forum: Other health news and research
  5. Arnie Pye
    Post

    Memory problems

    Yes I have. I had a severe GI bleed which went on and on and on (for several years)... I suspect I ended up with very low blood volume and various...
    Post by: Arnie Pye, May 9, 2019 in forum: Neurological/cognitive/vision
  6. Arnie Pye
    Post

    Memory problems

    Deficiencies of vitamin B1 (thiamine) and vitamin B12? They can both cause severe memory impairment. Statins? These can cause global transient...
    Post by: Arnie Pye, May 9, 2019 in forum: Neurological/cognitive/vision
  7. Arnie Pye
    Post

    Supplements and activity designed to improve circulation - an experiment.

    Do you know which of your supplements has had this effect?
    Post by: Arnie Pye, May 9, 2019 in forum: Other treatments
  8. Arnie Pye
    Post

    Discussing acceptance and commitment therapy in ME/CFS.

    I don't know if it is just me, but Acceptance and Commitment Therapy sounds disturbingly like "Accept the Lord into your heart, give your life to...
    Post by: Arnie Pye, May 8, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Arnie Pye
    Post

    Use of antidepressants for/with ME/CFS?

    Anecdotal info : I developed tachycardia when I went on amitriptyline for neuropathic pain. According to the Patient Information Leaflet it is a...
    Post by: Arnie Pye, May 7, 2019 in forum: Drug and supplement treatments
  10. Arnie Pye
    Post

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Hysterectomies are very big business,at least in the US. According to this link : https://www.hersfoundation.org/facts/ When they refer to...
    Post by: Arnie Pye, May 5, 2019 in forum: ME/CFS research
  11. Arnie Pye
    Post

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Is this a warning shot across the bows of women with endometriosis that their condition is going to be "disappeared" (even further than it already...
    Post by: Arnie Pye, May 5, 2019 in forum: ME/CFS research
  12. Arnie Pye
    Post

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    Doesn't every study these days have to include a mention of symptoms that are potentially of interest in mental health? These are the gateway...
    Post by: Arnie Pye, May 4, 2019 in forum: Other health news and research
  13. Arnie Pye
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Ah, that is brilliant! Thanks for the link. :)
    Post by: Arnie Pye, Apr 30, 2019 in forum: Fundraising
  14. Arnie Pye
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I don't think I've seen it. Picture?
    Post by: Arnie Pye, Apr 30, 2019 in forum: Fundraising
  15. Arnie Pye
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Captain America theme? Or Ironman? Or Superman?
    Post by: Arnie Pye, Apr 30, 2019 in forum: Fundraising
  16. Arnie Pye
    Post

    Use of antidepressants for/with ME/CFS?

    That effect is known as "brain zaps" to people who've suffered from it. Google for "anti-depressants brain zaps" and you'll find loads of info on...
    Post by: Arnie Pye, Apr 29, 2019 in forum: Drug and supplement treatments
  17. Arnie Pye
    Post

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Yes, Preview works - I just checked. I don't tweet and don't have any desire to either. I've never created an account. I learned how to read...
    Post by: Arnie Pye, Apr 27, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Arnie Pye
    Post

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    [MEDIA] You don't have to do anything special to embed the Twitter post. Just paste in the web address by itself and the magic happens when you...
    Post by: Arnie Pye, Apr 27, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Arnie Pye
    Post

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Twitter response from Zoe Harcombe on the Jerome Burne article about ME/CFS. Annoyingly, she refers to "chronic fatigue", as do several people who...
    Post by: Arnie Pye, Apr 26, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. Arnie Pye
    Post

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    What do you classify as a "benefit"?
    Post by: Arnie Pye, Apr 26, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
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