The data from these studies are incredibly valuable, but I'm not sure we know enough yet to recommend repeating them, specially given the...
"Further research is needed to better understand the role of pacing in ME/CFS and potential adverse responses to CBT and GET." I don't understand...
Just tried that; the article loads momentarily, and then is replaced by the sign-in screen. Pressing 'reader view' on Safari (which often gets...
I guess it depends how you look at it. This phenomenon affects me (and probably most ME patients) all of the time, so the 50% rule automatically...
Interesting – I tried pasting the link into a private browsing window in Safari, and got this: [ATTACH] Then repeated exactly the same process...
I've just checked again, and the link in @Helene's original post now works differently. I'd have to create a free account or log in via Facebook...
More thoughts – or, more accurately, questions. We've established that it's fiendishly difficult to assess our level of function due to the fact...
Couple of thoughts. 1) Should we use 'impairment' as well as – or instead of – 'disability'? Without getting into a long and technical discussion...
I too got my first ever result direct from the study today! The previous system was that if you tested positive, you would be contacted by your...
Interesting! My perception of usage in the UK is that 'peeps' often means members of an identifiable group, without implying that they necessarily...
It's interesting they appear to suggest that increased circulating levels of kynurenine could be linked to central fatigue, when the OMF trial is...
This is quite common with mailing lists. Certain mail servers can be set to bounce incoming messages that are tagged as spam – and some users may...
"We want the satisfaction of closure." This really gets to the heart of attitudes towards people with ME. Lovely article by Nadine, thank you so...
To add to @Mike Dean's post, there's also one from the Grauniad: "Lasting symptoms may not be down to a single syndrome but several different...
:rofl::rofl:
I think it's often just that they've tried it and found that it did nothing, or made them worse. Personally, the tricyclics I've tried...
The article above appears to have been translated through half a dozen languages before arriving at the English! :rofl: ...He added: “It’s not a...
Indeed. Instead, it's full of tin-hat conspiracy theories. Perhaps if we didn't have leaders whose actions and decision-making have left the...
Similar thing has happened where I live. Number of cases in my local area stands, as it has done for months, at 0 - 3 per week in a population of...
Absolutely. You'd have to repeat it every day for months in order to get a broad historic average, but as that wouldn't describe your status...
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