I've used this ever since they introduced it, I've found it really good. I usually have two deliveries a month, but if I need a small order that...
Welcome, @Aquarian1! ME groups are clubs no-one wants to have to join, but hopefully you'll find yourself among friends here.
Research it, so they're less baffled? Doesn't really apply to primary care physicians, of course. All they can do is follow best practice: rule...
Yes, me too – it does have a medical meaning that's a bit different, but all the same it's not quite right. Still think the most accurate...
I do understand what you mean – it's quite hard to define, but I think I only experience fatigue when I have exhausted my energy. For instance,...
I don't know whether this is useful, but as it's at least short, I'll add it anyway: Would we be measuring fatigue, or energy? (I interpret...
As an aside, it seems ingestion of sugar is problematic across a fairly wide spectrum of ME patients. Not necessarily because it causes GI...
I'm really hoping this is the final death knell for GET. I know it's not a NICE publication, but it's from an influential journal; it's quite hard...
This is why it's so difficult, and needs several types of measurement. I only experience OI when standing, so I not only spend all of my waking...
Think we're going to need a bit more than a nice smiling face and a vision statement, to be honest!
To be honest I'm not too worried about that aspect of balancing the information. I'm unconvinced that a pathological fear of activity even exists,...
It's absolutely outrageous, and whoever sanctioned this should be facing disciplinary procedures. I'm speechless.
And yet I heard a government spokesperson today saying [in connection with the commitment to prioritise reopening schools] that the evidence shows...
Clearly hasn't read anything about ME either, never mind lived it! Though I guess we should make allowances if she's ill. Hopefully someone on...
But can those of us who think we know our trigger be absolutely certain, especially if 'two hit' theories come into it? Many of us just don't...
I suspect we may even end up with some poor souls who meet both the ME criteria and those for lung damage or the after-effects of circulation...
I see what you mean, @Trish...I can't make a lot of sense of it either! The only thing I've learnt about fatigue is that it's part of a...
The oddest sensation I've had is a grinding, low-frequency vibration that goes down the centre of my spine. I've only ever seen it mentioned by...
I wonder if one factor could be that people living in areas with the highest population densities are more likely to be housed in overcrowded...
Slightly off-topic, but it might be worth saying that this is a fallacy that's been hanging around for decades in organisations that can't be...
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