The fact that they're saying they'll change people's names suggests this is probably the case. If they wanted them for research purposes, it'd...
Same here; I'm not even sure what triggered my ME, but 'progressive accumulation of dysfunction' sums it up perfectly. Mine took many months too.
Good! Judging by the number of articles posted on Facebook, there's been enough publicity in the mainstream media to have attracted the attention...
I get this when in severe PEM. I was worried when it first started, so I mentioned it to my GP; he said that in meningitis, there are usually...
I get it too. I'd always attributed it to the immune flare I get after exertion, as I feel the same way when I have a virus coming on. No idea...
Just to say a belated thanks to @Andy and the rest of the team for the presentation yesterday. It was so good for people to be able to put faces...
People may not yet realise that it's a symptom. It might seem an odd thing to say, but I had a lot of issues that I wouldn't have been able to...
In the middle of a pandemic, isn't testing the flipping government's job? Even in the US?
Sorry, my reply came out much more negatively than I intended. I was hoping to learn more from others' responses, whilst acknowledging that I've...
For me, nothing (and believe me, I've tried!). I'm relatively mild, but I still have to space out things like a trip to the pool, meeting up with...
My approach has been to find the best models by trying them out in the Disabled Living Centre (these tend to have a variety of names depending...
I'm not sure, but I think 'monstrous' would probably cover it. It's designed to tackle all kinds of terrain, hence the low-pressure lawnmower...
I saw that. Whilst it's too early to know whether some patients will develop ME, I do wish people were warning them of the possibility and...
Lots of models have the option of adding a tilt-in-space module. I decided to go for one when I bought my latest; I don't use it as often as the...
That looks fab! I haven't got a pusher, so mine's a big electric jobbie with 6" wide lawnmower tyres, but it's not as cool as that. (I do tank...
It's great that numbers have gone up so quickly. I saw a Facebook survey from the MEA earlier, asking whether people had signed up – quit a few...
The most important question for me is still 'What is PEM?' Until we understand that, trying to measure it or predict who's most prone to it is...
I've been doing swab tests weekly as part of the ONS study. The throat one can be a bit uncomfortable until you get used to it, mainly because...
Interesting study – it's about time researchers did some proper work on this problem. It can make people's lives a misery until they figure out...
In the UK, housing allowance to cover rent is separate from other benefits, which is a big help. I get 88% of my rent paid; if I didn't have a...
Separate names with a comma.
