Click here to read the full paper on sci-hub
It's the young men, borderline sociopathic and psychopatic, who are attaching themselves to PACE trial criticism. True ME patients are well...
Another limitation is the sample size of 50 patients and 50 controls. It feels a bit small for the hundreds of things they're measuring. Women and...
There doesn't seem to be any unlocking of the disease here. It seems that every research group is seeing somewhat different metabolite profiles....
The adaptive pacing therapy manual for therapists in the PACE also made a complicated therapy out of the simple idea of pacing. It mentions...
That pacing involved a therapist and visit to the clinic was an attempt to move it closer to CBT/GET in terms of placebo effect (not the best...
One of my worst reactions to food appeared to be due to gluten free chocolate cookies. Generally it's the cheap highly processed industrial food...
Even if the illnesses are distinct entities it would make a lot of sense to cooperate at the science and advocacy level. We're in the same boat,...
Isaac Marks co-authored this clinical trial of CBT for CFS. Michael Gelder's obituary acknowledged his role in developing CBT for CFS. The Oxford...
But asking patients to rate their ability to do things isn't as reliable as actually measuring how well they can do things. Because patients are...
It would be called patient conversion therapy. The goal would be to get the patient to stop identifying as chronically ill and disabled person...
Excellent video.
@Lucibee May I suggest a virology guest post @dave30th?
I doubt that insurance companies would demand that. They would risk handing the patient proof of disability on a silver platter.
It is also important to try and catch PEM and orthostatic intollerance early on in patients with unexplained fatigue because that can prevent...
If it gets better with eating it's probably hypoglycemia. Becoming very hungry during these episodes would also indicate hypoglycemia. That hands...
There are good reasons to think that many of the patients the CBT/GET proponents are working with do experience PEM. This is apparent from the...
The diagnostic criteria probably do matter in the sense that patients who are less impaired are more easily manipulated into reporting improved...
My message to NICE on this topic would be something along these lines: The exact reliability criteria (as I call them here) would be determined...
I think it would be hard to make misleading claims if treatments had to demonstrate an increase in activity levels that is sustained for 8 months,...
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