Thread here: Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1 reactivation in ME/CFS and long COVID 2023 Liu,...
Regarding the funding: I wondered about whether there was a US government funded ME patient registry. There's this one: The Multiple Sclerosis...
Perhaps coming up with a new definition is a valid thing to do, and certainly enquiring into cultural knowledge of ME/CFS and any traditional...
Copied post From @Jacob Richter's link on MS genes: Interesting, and it really underlines how important it is to set up patient registries that...
From @Jacob Richter's link on MS genes: Interesting, and it really underlines how important it is to set up patient registries that track patients...
Message sent. I've also sent a message about it to the Chair of the New Zealand Ministry of Health Long Covid Advisory Group.
@PhysiosforME, you might find this video useful?
I plan to send emails to the HealthPathways people tomorrow, to get this included as a resource on the ME/CFS pages (Doctor and Allied Health...
We've created a new thread in Resources for this excellent webinar which had input from @Ravn, and moved posts about it to that thread...
It's not often I can recommend an ME/CFS educational resource without reservation, but I can certainly do that for this video. It is very good,...
60 participant; quadruple blinding Secondary outcomes I don't fully understand the rationale of the primary outcome. It's just seven questions...
They give an example of a composite reference standard: So, I think we could classify the current ME/CFS diagnostic criteria each as a...
@Midnattsol would be great. I live in Christchurch and would be happy to have a chat with the dietician.
From the Discussion, on cognitive impairment: I'm not sure about the idea that permanent cognitive impairment is a consequence of the disease....
From the Discussion, on pulse pressure:
Yes, I agree. When I last had a detailed look at my blood pressure, which was nearer 10 years post onset than 4 years post onset, I was still...
Post-orthostatic challenge cognition All three disease groups performed significantly worse than controls at baseline, and got even worse after...
It's looking like the study has been well done. There is good attention to diagnosis for selection, and to appropriate controls. Heather Day1,...
Article in the New England Journal of Medicine The Origins of Covid-19 — Why It Matters (and Why It Doesn’t), 22 June, 2023...
If quality of the research was the criteria by which we judged whether the usual formatting should be applied, the 'usual formatting' would not be...
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