In the repeat CPET study that I took part in, one participant with an ME/CFS diagnosis did not show the characteristic decrease in performance on...
I read in a tweet that Ed Yong wanted to focus in on the symptom of fatigue for this article, having already done an article on brain fog. 'An...
Not to diminish the enormous losses, but just on the richness or otherwise of personalities: Of course we on the forum don't get to see members...
It is a brilliant article. I'm grateful for it, and I will use it for advocacy. I just wish Ed had not ventured into promoting supplements and...
Having listened to the call, the main thing I am left with is the great and increasing gap between the need for care, for treatments for ME/CFS,...
Dr Cope from the CDC started the call This sounded like a genuine acknowledgement of ME/CFS with actions, including work educating school nurses,...
That includes the Chair Stand test, which is what I was thinking of. But it still only requires 5 repetitions. I don't think that's anywhere...
True. It's just that I've tried doing the test in my hallway in the past, and it seems such a subjective thing. If the person has a fairly...
Professor Altmann was interviewed on New Zealand national radio. The interview is discussed here: Long Covid in the media and social media 2023...
Yes, although I don't think a 6 minute walk test is very good for measuring changes in function. Most people willing to participate in a trial...
I understand what you are saying, but I think I disagree. I've seen fine work done at the honours and Masters level. And, although papers are...
Master’s thesis in Clinical Health Science - Pain and Palliative Care Supervisor: Tormod Landmark May 2023 Norwegian University of Science and...
As Simon says, I think it's still an important principle that there is not a reliance only on subjective outcomes in unblinded studies. When pain...
I started out skeptical, but I actually don't mind this review. The main text is a lot better written than the summary quoted above. I mean, I...
Thanks @Ravn, the podcast sounds good. I'll have to check it out. I thought this poem from the poetry-music link described PEM so well. The Day...
Thanks for the links Art.
They do repeat CPET tests (in a tiny sample, but still), and find the 20% decrease in workload capacity that is so often found in ME/CFS. And...
Maybe that's a research project worth doing? Perhaps ANZMES would fund some work to make a proposal to take to the NZ government? It would be in...
Just to be clear, Butler's PACE study was some respiratory-related thing. Surely Butler was aware of the first PACE study, so it's a surprising...
It's certainly not science. I'm not quite sure what it is, but it doesn't reflect well on the authors. https://www.stephenrollnick.com/ Stephen...
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