Good to see plenty of push back shame it is necessary
Ah ok i reckon the two guys who do the videos - recently had Brian Hughes and Nina Muirhead on - Gez Medinger and Asad Khan seem fairly clued up...
As there is an existing APPG on MECFS I doubt very much the CV group will get involved directly in any lobbying on MECFS. It would be for the...
It’s a long article but worth a read I feel the writer seems to have put in the effort to understand and describe the wider context Long Covid has...
Thanks @Adam pwme ive shared this to my Facebook friends and had a couple of responses
Thanks can only blame brain fog for inaccuracies. And clearly that approach would be extremely challenging to achieve anything with so not the...
I feel like the fluid intake situation seems to fluctuate as much as food intake. I can go for long periods not drinking much or anything even...
ACT ok well on what evidence base is that being applied to people with ME? Is it even referred to in the draft guidelines?
I think a petition about research funding would best be done as a coordinated effort across ME organisations and including forward ME, And surely...
Yes it is depressing how difficult it is to achieve change but the point I was trying to highlight is this time it is the staff not the patients...
Didn’t the patient reps resign off the 2007 review?
Good point about GPs @Kirsten i have an appointment actually in the surgery for my hypertension etc (not ME of course!!) annual review in a couple...
The content of the guidelines is a really important step in getting change to happen but we shouldn’t be under any illusions that some big switch...
Shopping bag?
Yes @cassava7 I am generally pretty relaxed with people but overexerting/OI results in me getting unusually snappy. Even though I don’t have...
I think we all know why
New recruit to the BPS ranks desperately trying to prove his zealot credentials to make up for his previous unapproved comments.
Maybe @dave30th will drop them a line for their thoughts
yes simplistic and ridiculous on a par with sleep hygiene
Nice one :thumbup:
Separate names with a comma.
