Wow that’s not exactly up to date is it CFIDS was a good few years ago wasn’t it? Looks like an old article from elsewhere on the web that’s been...
@JemPD the article on the bbc said you can book after 5 months but many people might have the jab around 6 months. Presumably assuming there will...
Not ashamed, bloody fuming
I booked my third yesterday as apparently Monday includes the previous weekend. having the jab next Monday which is 6months 3 days from jab2
Wow that is seriously impressive. I think the recent ME Action one for the NICE guidelines was the highest in the U.K. but was half as many...
Over £5k now :thumbup:
Yes indeed fudge and humbug
Hi @Simbindi I phrased it that way as the type of enquiry someone with ME moving in to the area wanting to engage with CFS services might ask. I...
Activity Management is a therapy as well then o_O
Oh not yet I haven’t finished with patient services yet. I want them to do the work asking the questions within the organisation then when they...
Yes a reasonable article by the BBC maybe useful for @dave30th in his pursuit of the CBT for IBS approach
Despite being filtered through google translate this is a well constructed petition concentrating on communicating clear demands rather than...
Heard back from patient services at the CCG apparently sending a link to the ME Association website pointing out there’s a list of services and...
Let me see - how a test might help….. ok - so you’re saying a person with suspected ME is supposed to be the expert in what tests to do and how...
Heard back from them today, apparently a response to an email is please phone us. Replied saying I prefer to communicate by email will see what...
Here’s a leaflet from the community based pain etc service in Nottinghamshire which covers ME/CFS as well. I can’t copy from the pdf but there’s...
Well sometimes you have to push up to the boundaries to get things to happen.
No I’m not suggesting branches of the National organisations. You don’t need to have a formal organisation structure to do advocacy activity. We...
This prompted me into a bit of action. I checked the MEA list and as I thought there is nothing on it with a link to a service where i live. I...
If it’s nothing like what Parker does why is it called Lightning Process? Twisting words just like those saying what they do isn’t the same as...
Separate names with a comma.
