Need to avoid duplication of effort
Yes the ME organisations need to take a lead, in some places there are effective local charities/groups, eg Sheffield that are probably going to...
I can see why that might work
He’s possibly beginning to understand that his perception of how things were going in the world of CFS/ME was rather blinkered. When you know and...
My unscientific take is this 135week business is dancing on a pinhead by PACE proponents
Also taking out the financial aspect. In terms of self worth there are voluntary activities of value to society such as working with patient...
Yes @Peter Trewhitt I remember the uncertainty around knowing what was going to happen. I was trying so hard to keep working but it was really...
@Samuel i think this is the video you mentioned [MEDIA]
Oh I agree it’s much bigger but it has to start somewhere and steps that can be taken must be. For example ME association have a budget for...
Wow that’s a brilliant advocacy action by Rachel Ephgrave i hope Phil Hammond has the guts to take up her offer…….
these people are so convinced they are such geniuses on ‘CFS/ME’they think they can say whatever they like about their ‘model’ and it will be...
LP ‘support’ i suspect boils down to us & them mindset. One of them in particular ie Crawley is l8nked to it, criticism of her due to LP...
Dancing and jabbing like Mohammed Ali. 3 knockouts :trophy@
I feel like every single one of these people sending in comments from their organisation needs basic awareness of ME. A copy of the Purple book...
It’s passive aggressive behaviour - the whole thing was set up for them to discuss like adults but….
Nauseating.
I was back starting very gradual phased return within 6 weeks of finally getting a diagnosis. I tried for months and months to increase hours...
Boom boom
BMJ i seem to remember Ingrid Torjesen had hashed up a previous BMJ article about ME
Go for it Brian we’ll get the popcorn ready :thumbup:
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