Why not just admit we haven't a clue and say so and then describe the symptoms that are typically used to define ME in the various definitions....
But they may data driven (for example, due to mental representations/knowledge encoding learned due to environmental signals) rather that due to...
I agree with this. Sometimes I think it has become a short hand way of saying that CBT/GET don't work and hence the theories behind them don't...
Don't we need two forms of replication. The first being simply to repeat the experiment to check the same results are obtained . But isn't there...
So would it be more accurate to describe ME as a disease of unknown cause that leads to symptoms across multiple systems including neurological...
MEPedia is clearly a big project and I can see it needs contributors but at the same time it needs to be accurate. If it isn't accurate or does...
I thought the point was to try to not make articles opinion articles or theories but to reflect the range of different views based on the primary...
I don't think we can expect much from the guidelines but the removal of GET/CBT and some improved guidance on managing patients with long term...
There are issues with the HADS scale in terms of measuring depression. The questions are not great. What may be interesting is to look at...
I wonder if an alternative research project would be to look through notes of people who were eventually diagnosed with something (say cancer or...
Slightly off topic but in terms of cause of death etc Jason did a ME mortality study where they did a survey based on asking patient families....
Here is our (S4ME's) response which was discussed here:...
They did come out against Oxford as a definition and it is particularly poor. But their analysis wasn't good in terms of the studies using Oxford...
I'm not sure how much it matters. From a clinical perspective I would favour wider criteria with the warning to look for other causes of symptoms....
I would be concerned that ICC doesn't pick up mild patients. There is a paper by Jason looking at different criteria on a set of patients...
You could try to take the support group out of the equation and look at what the support group gives. For example, an understanding of the...
I had thought they may have looked at it in the mediation paper. I have a vague memory that they didn't find an association (but that wouldn't be...
I assume they have supported her in doing research without ethical approval since she is an NIHR fellow which I assume means they pay for a...
Maybe we should be asking the NIHR if this is an endorsement for carrying out research without ethical approval.
This group doesn't have a position and I would certainly not view my position as the position of the forum. One function of the forum is to...
Separate names with a comma.
