I think the latest versions have been corrected. Both the uploaded one and the URL: https://www.s4me.info/docs/PaceBriefing3.pdf
It does feel strange. Like they see it as a point where they can see what results are and tweek the protocol. I can see it is valid iff the...
Given its in Bristol I assume she will be attending if not helping with the organisation.
I think one of the most useful things would be a more detailed documentation of ME. For example, the range of symptoms and how they fluctuate. I...
I was thinking of going since its in Bristol.
I did wonder if we should submit an abstract for a poster? Perhaps on problems with subjective outcomes and why the CFQ should never be used!
I think it does matter how wide the net is cast because if doctors can easily diagnose CFS and then basically dismiss a patient they will miss...
I think this is the most important point in response to this document. We need to emphasize it and repeat it. I would be quite happy if this was...
I think the point is that you have additional information and a potential decision to keep or change the protocol. So the additional information...
Can you think of examples where this has happened beyond Crawley. I think there are two points here with the first being around the ethical...
It does look like the ethics committee has extended it from a feasibility study to a full trial. Which seems to me very dodgy. From the Smile...
She doesn't just dismiss us she propagates and promotes that myth. But here comments should reflect badly on her reputation as a proper...
In terms of the GDG I thought this was interesting [MEDIA]
The recovery paper was a big own goal for them because it is indefensible and some trivial level of thought would have told them that. There...
I can't see a requirement for a 20 point improvement in the recovery criteria. There is a requirement to meet the Oxford criteria but even this...
They were collected from various social media sources so there is no way to verify them. I suspect the original purpose was to counter claims from...
If someone blocks you then if you log out of twitter you can see their tweets or use incognito mode in the browser.
They have promised this for a while but they want to review any work done prior to sharing data so its not valid sharing. Also we have no...
They don't measure the underlying condition but the effects of the condition on activity. (Not sure about the CPET one but more validation is...
They didn't publish it it was a peer review for the paper on PACE that was submitted.
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