I followed most of the streaming. To my surprise one of the user representatives for The Norwegian Research Council's project on ME research was...
Where's My Apology, BMJ Open? This morning I sent the following e-mail to Dr Fiona Godlee, the editor-in-chief of The BMJ and editorial director...
A letter to the editor in a Norwegian news site about medicine. It says that the withdrawal from Cochrane is good news for the patients, and it's...
They're going for the Reuters' version and links to a previous article from 2015 about the Swedish patient organisation "trying to stop research"...
Response from Valerie Eliot Smith My response to a statement from Aarhus University Hospital (Denmark) regarding a demonstration in New York City...
I don't think this has been shared in this thread? A statement from Per Fink himself from Oct. 17th published by Aarhus University Hospital The...
From the letter: 2. Fast track publication (page 6) - It is not for us to comment on the editorial practices of a highly respected international...
[MEDIA]
Svenska Dagbladet, one of Sweden's biggest newspapers has an article (paywalled) about an ME-patient who had to move in with her grown up son...
Could someone please let me in on what "Spiked" is all about? Have seen it popped up repeatedly in the Twitter debate about the Cochrane withdrawal.
[MEDIA] [MEDIA]
New blog post from Nina Steinkopf, the initiator of this petition. She is asking patients and carers to tell their stories about what the...
The Norwegian ME Association with official, good and important inputs for the state budget 2019. 1. Continue the support to the research team at...
National Standards for Public Involvement in Research: missing the forest for the trees Abstract Biomedical research funding bodies across Europe...
Good thing screen shots were taken. She's deleted some of her tweets, as the one James Coyne is answering to. [MEDIA]
#MEAction's response to the statement from Aarhus University Hospital Join the fight against stigma and pseudoscience in New York When people...
5 000 signatures :party::emoji_boom::woot: and keep them coming!
Statement from Aarhus University Hospital Danish research on functional disorders causes a stir in the USA The Danish consultant and professor,...
Extrastiftelsen is a big foundation for volunteer work. On Oct. 24th 09.00 - 12.15 they invite to a seminar about user involvement in priority...
[MEDIA] [MEDIA] [MEDIA] [MEDIA] [MEDIA]
Separate names with a comma.
