I don't know what is most promising and what isn't in biomedical research, partly because I'm not an expert, and partly because so little is known...
Thanks @RaviHVJ, that's interesting.
As I understand it, David Putrino is a physiotherapist who runs a rehab centre treating people with LC. So the above is presumably based on...
Immediately after reading your post, I saw this new thread: Biomarker-Informed Machine Learning Model of Cognitive Fatigue from a Heart Rate...
Cochrane seem to be drowning in procedures and processes and have long ago lost sight of the need for their reviews to actually make scientific,...
It's really sad that people misled into trying the powerful antibiotic have been harmed. I think it would have been more responsible for DrT to...
I have read the whole article. I think it's an interesting and well researched article with some very good points, setting ME in the wider context...
Counting the number of symptoms seems to me a daft way of assessing disease existence and severity. What about severity of each symptom and...
What we have struggled against is bad science. When a bunch of psychiatrists take control of the research funding and misuse it to twist research...
I've now found the page on the Cochrane website with all their Emeritus and Lifetime members listed and a bit about each emeritus member:...
In the list of people awarded emeritus membership of Cochrane in 2023, a couple of familiar names: Paul Garner Hilda Bastian From the minutes of...
From Cochrane's minutes of their Governing Board meeting in August/September 2023, an item which I assume refers to the review on this thread:...
Actually I think even that isn't adequate because not all episodes of PEM are the same, so an individual trying from memory to summarise their PEM...
I agree, @Ravn. It is surprisingly hard to describe my/our experience of PEM purely in terms of symptoms without either using imagery such as...
I get that we don't know why muscles and brain become exhausted and lose efficient function quickly in ME/CFS. Another part of the puzzle that I...
You may be right. I think it could be an imagery problem where I'm interpreting the use of the autopilot image differently from you. I think of...
Me too, Andy, except I would add - it gets worse the more I do, up to a point where I have to stop what I'm doing and don't feel the ability to...
What about the experience of running out of energy during a task and having to stop? I don't know what is going on physiologically, but I know...
No, that's not quite right either. If I could stop after a minute or so and go and rest for half an hour before doing the next minute, that would...
That doesn't seem to me to describe my experience at all. It's not about autopilot. I know very well the routine of, for example, having a...
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