I think the DSQ serves people with ME/CFS very badly. The list Andy quotes is far from PEM. It describes a mix of immediate fatiguability and PEF,...
https://event.roseliassociates.com/me-cfs-research-roadmap/registration-2/ Next webinars: Less Studied Pathologies January 5, 2024 Less Studied...
Me too, especially since there was recent news in the UK about the shocking prevalence of senior male surgeons misusing their power over the...
Ah, the old n = 1 gloating. I assume she also has your sympathy.
Fair point, I'm not excluding other conditions besides ME/CFS/PVFS/LC experiencing PEM. I don't have the medical knowledge or personal experience...
Thanks Andy, I agree, and I intended to say that in my section you quoted. People with ME/CFS experience all three of PEM, PEF and exertion...
I have been trying (unsuccessfully so far) to write an article about harms with GET, and as part of it have written the following:
Looking at the outcome data, the between group differences for most outcomes were statistically significant but surely can't be regarded as...
Another one misusing the Cochrane review, PACE etc to justify exercise.
I have just written to Hilda with a couple of suggestions of doctors who treat pwME and who people here respect. I hope she can get one of them.
Oh no, not again. I hope it clears quickly this time. :(:hug:
There is some clarification of this in the latest response from Cochrane to out letters, posted here:...
I assume this is a response to this section of our letter of 20th November So they are telling us that the complaint from the BPS people that led...
How awful. I'm wondering whether it was COFFI as an organisation, rather than individuals, which made the complaint to Cochrane about the...
I think it's all pretty much outside Hilda's control on timetables, details etc. The speed or lack of it seems to be down to when editors get...
I've added it as a tag, but I suspect you mean the coloured labels that can be added to research threads to indicate whether they are protocol,...
So no news on the protocol timetable, and the new member of the IAG is to be a clinician working with pwME for 'balance'. They already have two on...
I watched most of it, skipping through bits. It's based around Dr Asad Khan's experiences with Long Covid and interviews with Resia Pretorius and...
I see Paul Garner recommends it. Enough said.
That is so awful. On a more minor note, an aromatherapist I went to once in the 1980's turned out to be a Hay fan and spent the aromatherapy...
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