I thought they have some sort of shock-absorber mechanism.
That is so very good @Nancy Blake. I would love for SW, EC, etc. to have to stand up and read this out loud for all to hear.
Love the logical extension of the illogical BPS approach...
Definitely a trial ... :rolleyes:
I think it suggests they daren't try the same thing with GET.
So why the bold claims of recovery? And PACE was not predicated on whatever the original cause of the ME/CFS was, but the ongoing maintenance of...
I think what it means is that there needs to be a core set of measures, with an overall combined improvment in them seen, to count as real...
I presume by this you mean PwME having PEM with a cold, not the general population?
Absolutely, along with actual physical function ... not 'measured' via a questionnaire!
YES! If perception of fatigue reduces, then that is simply a secondary bonus, nothing more. I mean, if people's real physical capability improved,...
Exactly. Those who coined the CFS label must be very pleased with themselves.
That is excellent.
But this is my whole point. The BPS crew implicitly insist there is a relationship, and a simple one at that. "Please write down these numbers,...
Absolutely. I think the BPS'ites like to think that because they have converted things to numbers, those things somehow acquire magical...
Agreed. Even if you ask someone about an objectively measurable quantity, the response itself will inevitably be subjective. But it is more tricky...
I think a crucial point is for NICE to appreciate why assessment of objective outcomes is so vital, because I'm not sure they do. The whole thing...
Exactly so. Icily nice.
A crafty moron who doesn't want to distinguish I suspect.
I think it is also worth remembering there is still a long consultation period ahead, and I suspect that whatever other events transpire during...
I saw some in a jumble sale a while back. Job lot. :angelic::)
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