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  1. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    We are only recruiting patients. We already have healthy control data from the UK Biobank.
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  2. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks Robert, I'll pass that back to the team.
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  3. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    People chosing not to allow us access to their medical records will not stop us asking those people for their saliva sample. The decision on...
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  4. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Great short interview with Chris on Radio 4, https://www.bbc.co.uk/sounds/play/m001byy7, interview starts at 48:36
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  5. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hi, thanks for taking part. Access to medical records, while something that would be 'nice to have' for analysis of the data, is secondary to...
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  6. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks. I know that additional care was taken with the press releases and they included a list for the editors of what to do and not do i.e. do...
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  7. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    On the BBC News site, admittedly tucked away in the Edinburgh area section of the site rather than national section. Experts launch world's...
    Post by: Andy, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  8. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hi Binkie, thank you for promoting the study to others. If you've not seen your email by now then I'm afraid it will have been lost in a corner of...
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  9. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hi. The projections that we used are explained in the study protocol, published here,...
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  10. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hi BrightCandle. I'm checking with the rest of the team to make sure of my answer and I'll come back to you, most likely tomorrow now.
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  11. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Hi Tia, I'm checking with the team and will get back to you as soon as possible.
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  12. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks Kitty, and thank you for being willing to be re-contacted in the future. The design of the study does mean that even if participants aren't...
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  13. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks for posting this Peter, it prompted us to post a reminder that there is no need to complete the questionnaire in one go....
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  14. Andy
    Thread

    Orthostatic and Exercise Intolerance in Recreational and Competitive Athletes With Long COVID, 2022, Rao, Systrom et al

    Abstract Post-acute sequelae of severe acute respiratory syndrome coronavirus 2 (PASC) infection is particularly concerning to athletes who place...
    Thread by: Andy, Sep 12, 2022, 8 replies, in forum: Long Covid research
  15. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks very much. It was, and still is, very much a fantastic team effort by all involved.
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  16. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Should anyone on social media want an image to help promote the study, there is a selection available for download from...
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  17. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks for asking. I've double checked with the team and we definitely mean "less".
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  18. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Definitely this. The questionnaire platform has been designed so that it is possible to save your progress and return to it, so that as many...
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  19. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Apologies for re-using one of my existing posts but it seems pointless not to do so.
    Post by: Andy, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  20. Andy
    Thread

    Effects of continuous aerobic training associated with resistance training on maximal & submaximal exercise tolerance, fatigue, and QoL, 2022, Araújo

    Background and Purpose Dyspnea, fatigue, and reduced exercise tolerance are common in post-COVID-19 patients. In these patients, rehabilitation...
    Thread by: Andy, Sep 12, 2022, 1 replies, in forum: Long Covid research
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