"Statement on Launch Day We want to let you know that DecodeME has launched and fully opened recruitment. In light of Her Majesty Queen...
Unfortunately with any mass emailing, a certain number simply don't get through, and sometimes we can't know why that is the case, so I'm sorry...
A note, that I have also added in the opening post of this thread. Please note: not everyone will be asked to provide a saliva sample. We realise...
As of 11am, 12th Sept, an email was sent to everybody who registered for updates, giving them early access to the full registration and...
Times Radio interview with Jennie Jacques (actress with ME) and Chris Ponting. Forward to 2:44:00 for the start of this interview....
BBC Radio Scotland interview with Chris Ponting. Forward to 15:50 for the start of the interview. https://www.bbc.co.uk/sounds/play/m001bzs4
News in Brief posts for w/c 5th Sept....
"People with ME invited to take part in major genetic study DecodeME aims to reveal the tiny differences in a person’s DNA that can increase...
People with Myalgic Encephalomyelitis to take part in world's largest genetic study "People who have been diagnosed with myalgic...
Hunt begins for genes to unlock mystery of ME "A scientific mission to find the genetic signal to one of the world’s most puzzling medical...
People with ME invited to take part in major genetic study "DecodeME aims to reveal the tiny differences in a person’s DNA that can increase...
EDIT: Recruitment is now closed, thank you to all who participated. First publication, which is analysis of questionnaire answers from 17k...
Actually, given enough time, my brain has reminded me that I have previously used 'crash' to describe what I would now term 'PEM'.
Background & Aims Fatigue is highly prevalent among patients with inflammatory bowel disease (IBD), and only limited treatment options are...
Abstract Traumatic brain injury (TBI)-induced neuroinflammation is closely associated with poor outcomes and high mortality in affected patients,...
Abstract Very long-chain fatty acids (VLCFA) are critical for human cytomegalovirus replication and accumulate upon infection. Here, we used...
Highlights • Those tested positive for COVID-19 experience higher levels of depression after restrictions are lifted. • Psychiatric symptoms of...
Personally, I use crash to describe when an over-exertion has brought about an immediate, or close to immediate, increase in symptoms. Typically...
Yes, informal discussions around that have already happened.
Seen this question asked by several people on social media recently. "To #pwME and #LongCovid - is a crash the same as PEM, to you? Or are they...
Separate names with a comma.
