I think you’re absolutely right to avoid tiredness as a description. I think having no energy or charge on battery is more likely to be perceived...
As I understood his response to @Robert 1973 rather than having his mind changed by anyone Dr Strain explained he already didn’t think GET...
I would hope they are not talking about PACE style GET. Surely they have some knowledge of the history and its disappointing they have not...
Apparently the full thing is available from the authors in pdf if anyone is interested to get a copy
If you don’t live too far from your office and able to drive if there’s parking considering asking for a space. Maybe involved if they say you...
Yes my pension was affected from the decade at 85%. I only went to 15 hours for a year or so before retiring early and that didn’t affect my...
I think the meetings in person or in the office definitely depends on your organisation. I worked in a large organisation my team were based in...
Oh gosh yes that AFME booklet was what I used because I didn’t know any better. I remember the example in there of flexibility was someone who...
Some things I had as reasonable adjustments over the years (gradual onset ME meant I was undiagnosed for at least 7 years and I retired early 3...
I think there will be some useful material on ME association what is ME on the website - it is based on the purple book...
Great post @Woolie. Put aside time for joy - yes seems ableist. Who’s to say that for me, where things are at the moment, several hours spaced...
Friend with poly myalgia was on steroids for some time to start with but was keen to come off asap due to side effects and has now been off for a...
Hang on 2/3 recovery that sounds distinctly PACE à la Chalder Strain needs to read the purple book @Russell Fleming can MEAssociation send him a...
What is the source of the video @leokitten?
Sounds like Dr Strain would benefit from doing the MECFS CPD module. Perhaps a copy of the MEA Purple Book as well...........
Under served not as I read it undeserved although
Interesting response - do you want an appointment or don’t you - would imply you’re not the only person who had that experience
I thought they were aiming for the nanoneedle to be something that would eventually be cheap and widely available so if they can’t get the people...
I don’t think there’s any detail at all on there from GP interaction. Other than fatigue........ there is a report from my consultation with...
Just to say I appreciate your input on professional experience Joan :thumbup:
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