Yes, exactly. It's probably just a coincidence, but this reduction in the number of points in the scale will definitely help reduce the...
We have a number of threads on case studies where the proponents of FND did not have too little uncertainty, but way too much. The consequence...
Authors are: Caroline Barnett 1, Rebecca Davis 2, Claire Mitchell 3, Sarah Tyson 4 Sarah, a member here @sarahtyson, has been given funds by the...
I started out with good intentions, listened to the first one and fell asleep (to be fair the time difference wasn't helpful). But I woke up in...
Thanks MSEspe (I had missed the PEM section) As a brief definition of PEM, that's pretty good. On orthostatic intolerance: Those still seem to...
It's a fact that there are wearables that can measure to a reasonable level of accuracy numbers of hours 'sleeping', 'awake but not moving' and...
The chart on the differences in fibronectin in serum between healthy controls and ME/CFS was a bit underwhelming - there's an awful lot of...
There's a 'new and improved' version now: The modified COVID-19 Yorkshire Rehabilitation Scale (C19-YRSm) patient-reported outcome measure for...
Here's the paper on the original version of the questionnaire: The COVID-19 Yorkshire Rehabilitation Scale (C19-YRS): application and psychometric...
This doesn't look too bad, as far as it goes. Why it's called the 'rehabilitation scale' when it's really an assessment scale, and we don't have...
The modified COVID-19 Yorkshire Rehabilitation Scale (C19-YRSm) patient-reported outcome measure for Long Covid or Post-COVID-19 syndrome, 2022,...
Yes. And all these years later, we have just reviewed a recent study on CBT in Long Covid that used actometers to allocate the participants into...
We are past 100 posts in this thread, and I think we are still floundering around trying to understand what the project is aiming to do, and why....
So, if I'm understanding correctly, a previous infection resulted in the body's recipe for fighting that infection (would that be in the long...
It sounds as though you already have a very clear idea of the concepts you want to measure @sarahtyson. Maybe it would help make the conversation...
No need to apologise. You aren't responsible for what biomarkers can or can't do. In terms of how my illness affects me, which is what I think...
I agree. It is absolutely imperative that any assessment of people with ME/CFS that is being developed in 2023 involves wearable...
You misunderstood my comment; perhaps that was my fault. I was not suggesting that you are the "pet" patient. It was a reference to some...
(Just as an aside "Covid-19 worry scale" - COWS? Shades of "MUPpets") So, the protocol said that the result of the actimetry would put...
Yes, so the barest minimum level of effort. Brian, sorry, I can't tell from your comment if you think this was ok, or not. Do you understand the...
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