I guess the 'genius' category might include viruses that appear to cause something relatively minor – like EBV and glandular fever/mono – but...
This is why I've given up on membership organisations and just donate directly towards research when I've got a bit of spare cash. I know you...
It looks from that email as if he knows very little about the conference or the other speakers. I wonder if he's just got caught out, not having...
I've used tramadol for many years. I do eventually build tolerance, but I can manage it by rapidly reducing the dose, and then putting up with a...
I was prescribed one by my GP years ago, for night-time muscle pain. They seem to work in part at least by distracting you from the muscle pain by...
There are other services with extremely knowledgeable advisors, including Benefits & Work and Fightback4Justice. By the way, PIP isn't means...
Odd, isn't it, @Kalliope? It was funded by Solve, so I guess we can assume they did.
Thank you for that!
Interesting that there are different approaches to this. All my GP notes and blood test results for the last six years were included. It's easy...
I agree that many people will be scored this way on various descriptors, but in some cases it's open to a challenge. For instance, if a...
:laugh::laugh::laugh:
I don't know of any specific research, but as sensory sensitivity occurs in many illnesses – all the way from life-threatening conditions to...
It depends on whether it meets specific descriptors, I guess. I don't think the descriptors are a useful way of assessing disability, but they are...
I also wonder if they pick their battles. If your application shows how well you know and understand the descriptors, and you can demonstrate...
I agree. I've had vestibular problems all my life, and they are tiring – but it's not the same as fatigue. You also learn to manage them, even as...
I've been hesitating to comment, as I feel so lacking in knowledge, but does the 'sickness behaviour' response come into this anywhere? ME has...
...and children, when their ME symptoms are doubted by doctors. I suspect it might be another one of those things that'll turn out to be more...
If it's anything like EU arts funding, people will actively avoid applying! It's a shame, there have been some brilliant arts projects with...
Some of my thoughts in response to the article have already been elucidated, but my main worry is for children and young people being looked after...
@wigglethemouse, doesn't the same thing apply re. schizophrenia and donations to the Biobank as with severe ME? I have two schoolfriends who...
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