now the NICE guidelines are out it is pretty obvious that BACME had some kind of preview of the contents.
hmm, well like most of the 'experts' at the SMC they probably haven't read the whole guideline and the evidence it was based on (the PACE...
what are the implications for this and any other GET trial now with new guidelines?
the Guideline itself
General comment on guideline as a whole; good that there is coverage of severe/very severe and children in particular, but as per usual 'moderate'...
conveniently omitting the other earlier patient surveys that showed the same.
[MEDIA] [MEDIA] [MEDIA] [MEDIA]
Fatigue: p50 https://www.nice.org.uk/guidance/GID-NG10091/documents/evidence-review-4
surprise, PW 'expert'. Looks like PEM is being replaced with PESE (post exertional symptom exacerbation) page 49 page 51...
a response from AfME would be good.
superb piece. @Jonathan Edwards :heart: I don't know what the rules are re copyright but your commentary deserves to be published as it is not...
PW: “It is also remarkable that the committee use the symptom of post-exertional fatigue as a reason for not providing GET" surely they (NICE)...
when one of the many issues with PEM is often aphasia this approach is surely not the best(?) @Carolyn Wilshire
see also https://www.s4me.info/threads/adhd-drugs-for-chronic-fatigue-syndrome-how-well-do-they-work.1204/
CAI Seminar Series: Detection of brain dysfunction in CFS using multimodal brain MRI Detection of brain dysfunction in Chronic Fatigue Syndrome...
hmm Recovery from chronic fatigue syndrome after treatments given in the PACE trial https://pubmed.ncbi.nlm.nih.gov/23363640/
queue...........:emoji_musical_score: 'the sun'll come out tomorrow......'
my GP told me 'in ten years time this will all seem like a bad dream'. That was nearly 20 years ago.
email from #MEAction UK
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