I think anything questioning the integrity of PACE that he can't answer is an accusation.
Congratulations @Simon M at getting yourself a PhD student. This could be a really good example of including patients in research work also good...
I would ask him to comment on why as measures get more objective they show a smaller change with CBT and GET with the biggest change based on CFQ...
I think this could be the link https://www.gofundme.com/meactionuk
That's the point. Lots of implicit threats so it becomes a case of parents managing doctors and telling them what they want to hear. I do think...
My daughters temperature used to fluctuate quite quickly so when she felt worse it went up. It does occur to me that if someone is getting an...
If I was looking at the data the first thing I would want to do is collect additional data and look for correlations. For example activity...
I'm reminded of one FoI around the step test results for people who were claimed recovered. They turned the request down as it would take too...
I think someone did that and they didn't have the info. When it happened to us I had been warned that it could happen but I can't remember who...
Even then there are a vast range of different things that may be thought about including stuff like the stress of getting to where ever the test...
I think he does believe he is right and doesn't understand the criticism etc But then for his self image he has to believe that.
Its clear that they are still lobbying for their work. What they don't say is that they are the people responsible for the poor methodologies that...
But the treatments they are pushing are ones that claim to cure that is what the PACE manuals claimed. It just shows they are pushing a...
I think they only linked to Action for ME because AYME no longer exists. They clearly are avoiding making any attempt to understand the criticism...
I like the video. There are a few issues with the details she describes around PACE but the overall narrative is good.
They also published an article from White after the initial reanalysis of the recovery results and ignored complaints that it was inaccurate.
Not only the recovery claims but the claims in the manuals (which they seem to have removed from public view) where CBT and GET claim to be...
Maybe they will eventually get concerned about researchers general ethical behaviour. I would be interesting if research funders sanctioned...
@TiredSam I can set what media gets included as a media link and what doesn't. I think most things are selected on the media pack but I'm quite...
From what I remember of the previous framework projects they are big consortiums that need to be put together and they need the right members to...
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